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  1. #1
    Bayoubelle
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    Question New to thread. Really stressing out over my appt. tomorrow!

    I have primary amnorreah. I was told I have eggs or whatever in my ovaries, but my pituitary gland doesn't make the horomones needed to mature the follicles to ovulate. I have been on Menopur and Follistim for about 6 weeks and still nothing. My doctor and I are both losing hope. The expense has been OUTRAGEOUS and insurance covers very little! Christmas this year has come in little vials of medicine. My hopes are diminishing with every passing day and I stress out over the money that I could possibly be spending for nothing. my dr.'s latests thought are that possibly I have a receptor problem where my brain not only doesn't produce the horomones but also isn't sending out the message to my ovaries to tell my follicles to mature. Has anyone with primary amnorreah been successful? How long we're you on meds? How much? I'm currently on 75 menopur, 125 Follistim , 2mg estrogen pill and a prenatal vitamin. I have had puberty like symptoms and everything seems strange since all this is so foreign to my body. Telling people your 35 and have never in your life had a period makes jaws drop! Anyone else sick of explaing it?


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  3. #2
    Bayoubelle
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    Well dr. Appt was a relief. They believe they saw a 7 mm follicle. Hope is revived!


  4. #3
    Ng24
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    That is wonderful! You must have the receptors to mature a follicle. Some women just need a little more medicine to make that happen! I hope you are successful very soon!!!


  5. #4
    BeeRok1
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    I am new to this site but I am slightly comforted knowing that I am not alone in this problem...

    My prayers are with you Bayoubelle that you will soon see some wonderful progress! I was in my early 20's when my periods became significantly irregular and then I stopped having them altogether with no clue as to why. At the time, as a young woman, it was fairly convenient to not have a period and thought nothing of the consequences later in life when actually trying to conceive. I am now 31 and have almost nearly the same issue as you. Although my pituitary gland is working properly, something seems to be lost in translation and my ovaries are not responsive to what my pituitary gland sends out.

    My husband and I had been trying to conceive naturally for 6 years, leaving our graces to chance and God. Once we came to the realization that it will not occur without intervention, we went to a Reproductive Endocrinologist for help. I hit a roadblock when needing surgery to remove a very large fibroid sitting on my uterus. After that, blood tests showed that my ovaries were not responding to hormones of my pituitary gland resulting in my need for oral medications of Estradiol and Progesterone to simply have a period.

    Last cycle I took Clomid, which was unsuccessful. This current cycle I took Femera for 5 days and am now on day 5 of Follistum shots. It was truly nerve racking at first having started with a dose of only 75 for the first 2 days with little follicle growth. I was then upped to 150 and still not much action. I was again upped to 300 for the last 2 days and have seen some decent growth in ultrasounds with the doctor now realizing my threshold. I am now on day 5 and have been once again upped to 350 in hopes that this will give me at least 3-4 competing follicles at around 18mm-22mm in size for better chances of IUI.

    I am extremely anxious about a successful IUI so I truly appreciate your feelings. It is normal to feel what we feel even knowing that the doctor has the ability to manipulate medication dosing properly to break through for optimal response. Expenses are overwhelming and this has burned a severe hole in our pockets. I would love to receive the best present ever with a pregnancy before years end but I must admit I am so worried that this will take more than one cycle to try to accomplish pregnancy. Although frustrating, sometimes discouraging, and mentally and physically daunting, I am here with you for emotional support!


  6. #5
    Bayoubelle
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    Thank you all! I went today and I have 2 mature follicles! Both arre about 17mm. iUI is Monday! My doctor was so excited when she saw my follies were responding, she and my RN were literally jumping up and down clapping and said "I've never been so happy to see someone's follicles." they even told the other doctor who's been doing this over 20 yrs and even he was very impressed. Don't give up hope! Today is day 43 that I've been giving myself 2 injections a night! Yep, 43 days in a row and 2-3 blood tests per week! That averages what... Approximately 100 needle pricks and numerous sonograms since November 5!


  7. #6
    Bayoubelle
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    Just took my last injection! Ovidrel do your job! iUI Monday! I wish life had a fast forward button.


  8. #7
    Bayoubelle
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    First night in 45 days that I don't have to give myself an injection! A little nervous about tomorrows IUI. It's been a long road to this point and 35 years of not knowing if this day would ever come and even be possible. I'm very thankful for the advancement of reproductive science the last 20 years. Up till about 8 yrs ago, specialist after specialist couldn't figure out what was wrong with me. I now have real. Wish us luck and many prayers!


  9. #8
    dg1
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    Quote Originally Posted by Bayoubelle View Post
    I have primary amnorreah. I was told I have eggs or whatever in my ovaries, but my pituitary gland doesn't make the horomones needed to mature the follicles to ovulate. I have been on Menopur and Follistim for about 6 weeks and still nothing. My doctor and I are both losing hope. The expense has been OUTRAGEOUS and insurance covers very little! Christmas this year has come in little vials of medicine. My hopes are diminishing with every passing day and I stress out over the money that I could possibly be spending for nothing. my dr.'s latests thought are that possibly I have a receptor problem where my brain not only doesn't produce the horomones but also isn't sending out the message to my ovaries to tell my follicles to mature. Has anyone with primary amnorreah been successful? How long we're you on meds? How much? I'm currently on 75 menopur, 125 Follistim , 2mg estrogen pill and a prenatal vitamin. I have had puberty like symptoms and everything seems strange since all this is so foreign to my body. Telling people your 35 and have never in your life had a period makes jaws drop! Anyone else sick of explaing it?
    OMG! I am so happy you posted, the only time I have had a period in my life is from taking provera. Chlomid didnt work for me, so we went straight to IVF, in my 2 wws now. How did your iui go? I know exactly how you feel, I even feel weird telling the nurses at my RE's nurses that i don;t get my period...


  10. #9
    Bayoubelle
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    Iui went fine. I had a few cramps yesterday with ovulation. Being I've never really felt cramps it's all new to me! Tylenol worked great as suggested by my RN. Now I'm in the dreaded 2ww! January 3rd is pregnancy test day at RE!


  11. #10
    Bayoubelle
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    Wallowing in my own pitty!

    Well lucky me! 45 days of shots and $5000 in out of pocket expenses and a failed IUI! WhooHoo, now I have to welcome my first period EVER! Then the entire process starts over again! Not looking forward to having to tell my husband when he gets home from work.


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