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  1. #1
    DeeM
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    GADS vs ADOS testing for Aspbergers

    Hi there everyone,

    My quick background: DS (one of a twin) was dx AS mild to moderate at 2.4 yrs. old by a developmental pediatrician. Since then it has been apraxia, PDD NOS and currently Aspbergers.

    DS is now 6 years old and has had PT, OT, Speech, Pragmatic Language testing, social skills group at school, integrated classes (with his twin), therapy with a chiropractic neurologist. He is very smart, still does stim when he gets excited and is doing well.

    Recently we took DS to the Brain Balance Center (Dr. Robert Melillo's book) for an evaluation. Much to our surprise they said DS did not fit the criteria for Aspbergers, but more for ADHD (borderline).

    Since this, we have called our develop ped. to do testing, since we havent been back in some time. We thought that GADS (Gilliam Aspberger Disorder Scale) would be the way to go, but dr says ADOS (Austism Diagnostic Observation Schedule).

    Does anyone have experience with these ? We never had any formal testing, just a questinnaire that we filled out and gave info for....I was looking for something a little less subjective.

    Just wondering which one might give us the best information for where to go with DS and what treatments for the future....

    Thank you so much,

    DeeM


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  3. #2
    Terry
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    My spec ed attorney said the ADOS is considered by many to be the 'gold standard' for autism diagnosis
    Terry - Cancer Survivor- 9 yrs!
    Robert/Max 13 (Identical)
    Asperger's syndrome/ADHD

    “My children aren’t broken; they don’t need to be fixed. They have something special, they can think ‘outside the box’. So what if that’s because they don’t know the box exists. All I need to do is teach them how to deal with all those people who can’t think outside the box.”


  4. #3
    4sweeties
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    I am taking a class and was allowed to practice testing with the ADOS. It is supposed to be very good at differentiating between Asperger's and disorders that are similar (like PDD, SPD, OCD, autism). The two people I used it with seem like they could easily fit the Asperger's dx, but neither 'qualified' on the overall rating (although subcategories gave 'very likely' or 'likely' scores).
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  5. #4
    Lori
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    ADOS is the standard for many specialists.

    And, not to be picky (LOL!) but, it is ASPERGERS...not Aspbergers. ;-)

    Can you tell us more about the Brain Balance Center? My MIL thinks its the answer...but, I am skeptical...so much so, that I have not even looked into it! ;-)

    Lori
    Lori

    "C&N" 9 year old twins


  6. #5
    DeeM
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    Hi Lori,
    LOL abou the spelling, I was rushin to get it all in SORRY LOL

    If you want more info you should ready Dr. Melillo's book DISCONNECTED KIDS there is a lot in there that makes so much sense. Of course, I dont want to spend the money cause they do not take insurance. but my hubby is full throttle let's do this. Even after the eval, it sounds good and they know what they are talkign about. i guess it's a chance like anything else about working though.

    Dee


  7. #6
    momla
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    I've always heard that the ADOS is the gold standard but it is so subjective. SO subjective. There can be a huge difference in the outcome depending on how engaging the testing administrator is. Both of my kids had the ADOS for a study and the testing administrator (the psych grad whose study it was) was VERY biased. With Lydia she was very sweet, bending down to her level when she spoke, smiling and engaging her with eye contact, speaking to her in a very playful voice. With Jake she was aloof, withdrawn, standoffish, quiet, etc. It was ridiculous and we never completed the study b/c I wasn't going to support that kind of biased behavior. It made me really appreciate the team evaluation way of diagnosing with multiple different assessments and not relying on one alone.
    Momla Mommy to (10), (7)
    Baby Girl due April 27th!!


    "Shoot for the moon. Even if you miss it you will land among the stars." ~Les Brown



  8. #7
    4sweeties
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    Momla, it would be inappropriate for any assessor to base the ratings on the ADOS on one brief interaction. I hope the grad student asked you the questions or somone who knows Jake very well (if she didn't). I think all the 'tests' for asd/asperger's are subjective, same with rating scales for adhd and sensory issues.
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  9. #8
    momla
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    Quote Originally Posted by 4sweeties View Post
    Momla, it would be inappropriate for any assessor to base the ratings on the ADOS on one brief interaction. I hope the grad student asked you the questions or somone who knows Jake very well (if she didn't).
    No, she didn't. The two times Jake has had the ADOS done other than his initial team evaluation, it has been by someone doing it the first time they meet him. That is why we didn't complete the study. It was biased. I didn't want to participate in a biased study. Since she was the head of the study and it was her hypothesis, she should have had an independent evaluator doing the testing. I don't even know what his score was. I didn't care. She treated Lydia MUCH differently than Jake.

    Quote Originally Posted by 4sweeties View Post
    I think all the 'tests' for asd/asperger's are subjective, same with rating scales for adhd and sensory issues.
    Yes, that was my point. That is why it is better to have a team eval with multiple different tests. It helps to reduce error.

    BTW, I own the CARS. It is much more "black and white" than the ADOS. The ADOS just has subjectivity written all over it b/c it is so relationship based and you can alter a person's response based on how you engage them. Not that the ADOS isn't useful. Each test is one tool in the toolbox. I'm just suggesting to the OP that I wouldn't pick either one of those tests in isolation. I would go for a team eval using multiple tests if she needs/wants an eval for diagnosis.
    Last edited by momla; 05-19-2010 at 07:19 PM.
    Momla Mommy to (10), (7)
    Baby Girl due April 27th!!


    "Shoot for the moon. Even if you miss it you will land among the stars." ~Les Brown



  10. #9
    4sweeties
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    Quote Originally Posted by BC-momla View Post

    BTW, I own the CARS. It is much more "black and white" than the ADOS. The ADOS just has subjectivity written all over it b/c it is so relationship based and you can alter a person's response based on how you engage them. Not that the ADOS isn't useful. Each test is one tool in the toolbox. I'm just suggesting to the OP that I wouldn't pick either one of those tests in isolation. I would go for a team eval using multiple tests if she needs/wants an eval for diagnosis.
    I know you know Carla, I'm just adding my 2 cents It is a part of IDEA that no single test will qualify a student for an educational dx. There need to be multiple tests, including IQ and achievement tests (and I've found even the IQ tests can be subjective, at least vocab. portions).
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  11. #10
    momla
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    Oh, heavens, yes. IQ tests can be subjective too. I wasn't really fond of doing on IQ test with Jake b/c I knew how and how well he learned and I am his primary therapist and teacher. But, the place where he gets social skills group and language therapy really wanted and gave me a 1/2 way good reason for it so I agreed BUT I purchased a nonverbal based IQ test (chose the one I did after quite a bit of research) and I administered it myself. I didn't want a testing person who didn't know him administering it in an environment he wasn't comfortable with. I wanted it to be 100% accurate and the results we got are, I believe, dead on.

    That's good that IDEA requires that. I obviously know nothing about IDEA or any public school stuff.

    I've always wondered, though, what on earth does IQ have to do with autism?? Why do they want an IQ test on these little people? My girlfriend has a son with Down's Syndrome and they wanted one with him too. She was so against it but they forced her. I mean, she KNEW it would show he was in the cognitively impaired range and viola! it did. It just seems like they are trying to place a ceiling on their ability to learn and IQ can change so much. So, I'm just curious. Why do they have them do IQ tests?

    The only reason I agreed to it was that our SLP said that scores on language tests and IQ scores can kind of correlate. So, like in Jake's case, his language scores were within age appropriate range but the discrepancy between his low normal language scores and his IQ was great. So, she said we need to continue therapy until he is high normal language scores b/c that would be more to his potential.

    Just curious.
    Momla Mommy to (10), (7)
    Baby Girl due April 27th!!


    "Shoot for the moon. Even if you miss it you will land among the stars." ~Les Brown



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