Forum: Parenting Special Needs Children

My 17 month old twin boys were both born with aplasia cutis. No family history known of this hair defect.. Curious if it is linked to ivf icsi treatment?? Any info provided is welcome.

my son is 4 and is about to be tested for this! i have to set up the Eval from our school districts child study team and they will see how much help is needed. its hard because he is also going to be tested for being gifted he learns and retains knowledge at a 3rd grade level but he is also special...

This video is sadly very true for many districts.. YouTube - A Mom Talks with the Director of Special Education

My 15-month-old (almost 16-month-old) son has been diagnosed with developmental delays. He was on par with all his milestones up until 13 months, then seems to have started losing skills. Some of the issues we have been told are: 1. Expressive language delay. Does not point & grunt and has no...

Can anyone tell me a success story about a toddler who was diagnosed as developmentally delayed? My grandson is 13 months old, very engaging, with excellent fine motor skills, but he isn't crawling or doing many of the standard things children his age should be doing. He is soon going to be...

Just a quick update on how things are going for me over here. Had another family medical emergency. Well, it has been a really trying time for my family and I. My daughter, Aubrey, got out of her cast Thursday, April 29th. Was away to watch her since walking was extremely difficult and slow. ...

My husband and I did IVF with ICSI last year and had a baby with severe birth defects incompatible with life. Now we are considering implanting two of our frozen embryos. I have read that a vanishing twin can increase the risk of the surviving child of having neurological sequelae. Do any of you...

I have a 4 month old, 5 months next week but he was born 5 weeks early. I noticed almost immediately he didn't seem to hear so we've been through numerous hearing tests and he's been diagnosed with conductive hearing loss due to fluid, which we're trying to resolved but now he's also been said to...

I am not sure if this the right board but I thought I would ask. I am really wanting to talk to someone about this :) Thanks!

Hi, I have twin girls that were 28wk premies. They are 11m adjusted in age and almost 14m actual age. My one dd is said to have low muscle tone (another thread coming about that) and was referred to OT services through our insurance. In the mean time our state agency is coming out next week to...

Hi, My dd definately has low muscle tone but when I had her recent NICU followup with the neonatologist and OT - I got worried about how they responded to my questions. Like maybe it is CP - mild, and they just didn't want to label it that? I did actually ask straight up if it was CP vs. low...

This is to inform you that I may be away from here more than usual. My youngest daughter, Aubrey, had to be rushed to the ER last night. She has a spiral fracture of the left tibia. Long story short (of the whole experience), we had to take her back to the hospital this afternoon because her...

Chance will be riding in a horse expo that benefits the Friends of Therapeutic Riding which is the group that supports our hippotherapy and helps keep Our costs down. He is really excited...it will be in a huge arena and there will be lots of visitors (he is excited but worried about "too many...

As we all know, being a parent of a special needs children can have its challenges. What do you do to unwind? What helps relieve the tension/stress of a really long day? Post your suggestions here. Take one suggestion from another person that has been posted here (per month or per week)....

Yá'át'ééh! (Hello) everyone! I hope all of you are doing good out there. Spring is almost upon us and it's time to wake up from hibernation. :D Well, here is a little introduction of myself. My name is Rachael, Board Coordinator for the Parenting Special Needs Children BB. It's been almost 6...

Come to the New Users Chat on Tuesday, March 9th starting at 8pm EST to ask the questions you have about FT! How do I add an Avatar? Where should I post, where would I fit in? What does KWIM and HTH mean? Have any more questions like this or having trouble getting around the site? Come to...

Hi there. I have a DD who is 19 months old and who has special needs (feeding tube, epilepsy, developmental delay, etc). She is VERY hard to buy things for because all the "typical" toys for her age group just don't apply. She doesn't even crawl yet because she wasn't able to develop due to her...

What I am asking is, does it bother you when other people refer to our child/ren as *Special Needs*? Another post got me thinking. I have only ever referred to my own daughter as such. I mean, if I am speaking of her to someone who doesn't know her and trying to convey...I do say, special needs....

YIKES. Ok my kids are 8 and 10....the older one being the one with sn's...he is at probably a 6 yr old level. I have told him and dd the basics but nothing (shame shame on me) about HOW a baby is conceived. They know a bit about periods, the baby is in the mothers abdomen... it takes a man and...

A little update on my grandbabies. They will be 4 next month. Maddie is 28 pounds and Preston is 33. They are in preschool and love it. Maddie is doing great, you would never konw how sick she was at birth. Preston still can not walk but he gets where he wants to be, not talking yet, he has said a...

Well we got her test results on Tuesday. It was about as bad as I expected it, but it hit my husband like a ton of bricks. Well, I can't say I expected it to be this bad - I was sad for dd that she's dealing with all this - but I had prepared myself for the worst and that is almost what we got. I...

Hi everyone. I hope all is going really good for all of you. Thought of giving an update on how things are going for my famil and I. Aubrey has her first fractures. I'm pretty bummed about it. From the point of leaving work, to go home, then driving to her pediatrician's office, to talking with...

Hey! How is McKenna's recovery going? Is she much better, back to her old self,what???? I have been thinking about you all! Still never got that card in the mail. Yikes! Sorry...:D