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Parenting the Child with an Autism Spectrum Disorder or Related Disorders This board is a place for parents and caregivers of children with an Autism Spectrum disorder or related disorders such as ADHD, NVLD, PDD-NOS, or Sensory Integration Dysfunction. Come share your daily triumphs and struggles, give and receive support

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Old 09-25-2009, 07:52 AM   #1 (permalink)
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For the moms who love the children who are in the midst of the struggle

I was reading my old blog entries this week and thought this one might ring true for so many whose children are in the throes of the autism struggle. Remembering those hard times with Max still can make me cry. Remembering the good times, now that he is grown and out of the house, can make me cry even more. Enjoy.

NL

***********

Child of Mine
Posted 12-14-2007 at 09:36 AM by BC-NanceLee

Ooh boy - nothing like being reduced to tears on the drive into work! Dam*n cold day for tears, too - one runs the risk of them freezing to one's face.

MPR's "The Current" played that song this morning. It was dedicated by a mom to her returning adult daughter, home in time for the holidays and her dad's retirement party. The DJ said how it didn't seem to matter how old a child gets, they still love this song, as do their parents.

Then it started. And I was no longer driving up 50th in my Audi TT, I was sitting on the edge of Cole's bed singing to him, along with the song playing on his CD player. It was one of a bunch of songs on this CD that entertained us on our cross country drive to the Jersey Shore ("You've got to give a little love, have a little hope, make this world a little better..."). The kids were strapped in the back of my dear old Celica convertible, slathered to the 9s (more like the 50s!) in sunblock, shades on, jammin'. The CD was on full blast to compete with the wind and the interstate truck traffic. We sang our hearts out.

Cole inherited the CD; it was in his room and he listened to it darn near every night for months. When I would check on him, if that song was on or about to come on I would sit on the edge of the bed and sing along, quietly, so as not to wake him up. I could never do that with Max; much as I might want to, he would awaken with a start. All my singing to him had to be during waking hours! There was no sneaking in and out of his room - even now as a lanky 6'3" teenager, he senses when I so much as crack the door an inch to see if he's sleeping.

Another song from that CD, another moment: Sitting outside the offices of the child psychologist/play therapist Max saw every week for about a year, over in the Como neighborhood behind the fairgrounds. Paul McCartney's version of "Mary Had a Little Lamb". We would eagerly wait for the chorus, and then 8 year old Max, 3 year old Cole and - hmm - probably 10 year old Mom would drown Paul out, substituting our much cleverer version over his interminable, 22 la la's in a row: "You can hear them saying La La, Dipsy, Tinky Winky and Po... NuNu... NARRATOR...and the baby sun (and the baby sun)"

But Child of Mine. I know that song must tug at every parent's heart, must feel so perfectly appropriate for their own relationship with their own child. I am not narcisstic enough to imagine otherwise, and yet - the line "I know you will be honest if you can't always be kind" was written for me to sing to Max. Oh, how I would tell myself, in those days of school suspensions, psychologists, IEPs and Prozac and heartache; comfort myself as the tears streamed that while Max might never be "normal", might never fit in, might never be understood, might never learn how to ride that mysterious, wobbly bike of sociability, "He will never lie". That tiny yet noble certainty, the one ray of light blazing through our clouds. How far he has come. Sustaining friendships for 7 years now, riding that bike, and a real one, with agility and ease, making his way. He still isn't always kind, but who is? And even those unkind moments stem from his core honesty, his inability to sugarcoat - for to sugarcoat is to dilute the essence of a fact. And facts are the bones of life.

As much as I used to straighten up with brave pride at that line about honesty, I bawled like a baby at the bridge. How to tell him that the world didn't mean to be cruel, didn't try to make it so hard just to even BE? How to keep his spirit strong when just getting through one day at a time was such a struggle? I didn't know. I still don't. But somehow he - and I - have come out the other side relatively intact.

Child of mine. Oh yes sweet darling, so glad you are a child of mine.

Carole King

Child of mine


Although you see the world different than me,
Sometimes I can touch upon the wonders that you see.
All the new colors and pictures you've designed,
Oh yes sweet darling so glad you are a child of mine.

Child of mine, child of mine, oh yes sweet darling
So glad you are a child of mine.

You don't need direction, you know which way to go,
And I don't want to hold you back I just want to watch you grow.
You're the one who taught me you don't have to look behind.
Oh yes sweet darling, so glad you are a child of mine.

Child of mine child of mine, oh yes sweet darling
So glad you are a child of mine.

Nobody's gonna kill your dreams
Or tell you how to live your life.
There'll always be people who make it hard for a while,
But you'll change their heads when they see you smile.

The times you were born in may not have been the best,
But you can make the times to come better than the rest.
I know you will be honest if you can't always be kind,
Oh yes sweet darling, so glad you are a child of mine.

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The only choice in life is love vs. fear. I choose love. ALWAYS.

Change is inevitable, growth is intentional. - Unknown
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Old 09-25-2009, 08:42 AM   #2 (permalink)
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Thanks, NL!
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Old 09-26-2009, 12:23 PM   #3 (permalink)
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From someone deep, deep in the throes... thank you.
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Old 09-26-2009, 06:09 PM   #4 (permalink)
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Thanks!
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Each day as I watch you struggle I am reminded to find joy in the little things, to stop and smell the flowers, and that some things are more important than material things. Your smile melts my heart, and takes the chronic pain away, if only for a fleeting moment. Thank you for the joy that you bring, my son.
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