Where are the PRG. Immune Gals?...

[BC-Tabithalyn]

Well there is Loved2life and kirst I know that were going through some very great betas just beginning of December....

Generally when I know some of the ladies are prg. I try to ask for updates every so often so that it acts as encouragement and inspiration (especially to newcomers at this board!)

I'm really hoping for the encouragement sake on this board and for all the sake of those who would like the support and information you could offer that the prg. : gals PLEASE keep in touch at this board??!!

I'm sure with the many girls that land here at this board there have either been losses or prg. struggles along the way. But this board is not closed to talk of babies and prg. as it is greatly inspiring to others to hear the details and backgrounds of the immune ladies who are currently prg.
I remember posting here long before my BFP with my DS (nearly 3!) and the cautions of prg. and child ment. can still be used here for those who don't wish to read of it but I think that for the most part there are many here who feel so much more optimistic about the immune treatment helping them to success that it is only a good thing for us to share the stories and times of prg.

So, please, anyone who is currently prg. with immune meds and treatment please give us your update!!
and of course any of the : and : that you can throw our way for those ttc'ing!! tee hee! :babydust:

thanks ladies for sharing and caring!
Ally

[kirst]

Hey--I am still here!! Just not able to check the boards as often as I would like to! Everything is going well. We will have our 3rd ultrasound tomorrow and check my estrogen to see if I can go all the way off the patches. We are expecting twins and have seen great heartbeats and even actually heard them last week. We are still in shock and have not told very many people as we all too well know the ups and downs of this rollercoaster ride. Just praying that everything is still okay. My whole family got sick the week of Christmas, so on top of the yukk--I had a nasty cough. I had to keep telling myself that pregnant women get sick all the time and that the babies would be okay, but it scared me to death to just cough!
I actually came on this board to ask another question about MTHFR. I had my dad get tested for it, and instead he was tested for the fasting homocysteine levels which came back at 8. I don't think my levels were tested, and I am just wondering if anyone knows if testing the fasting homocysteine levels is enough? Maybe I will post a main thread question to see what response I get! He got tested after months of me begging him, and I just want to be sure that he has covered his bases. He said after reading up on it--it is the homocysteine levels that are more dangerous than the actual MTHFR. I hope someone knows more than I do about this one! Good luck to everyone TTCing--I will send sticky vibes everybody's way!! Kirst

[Lauren2005]

Hi Kirsten,

There is no universally-agreed-upon answer to your question. My homocysteine levels are completely normal, yet I'm being treated as an MTHFR patient with baby aspirin, Folgard, and Lovenox. That's Dr. Beer's protocol and also used by many others... I have a friend in the real world who is 16wks pg and has MTHFR and she is being treated with folic acid only... My parents are both heterozygous for MTHFR with normal homocysteine, but were put on baby aspirin and Folgard by their doctor as a precaution. As he said, baby aspirin is fine, and Folgard is like a big green salad. It really depends on the doctor. You may want to also check for more info about this on the "genetics" bulletin board. Hope that's helpful, and of course continued congratulations on your pg!!!

Lauren

[loved2life]

Hi girls!

I am still here too! I haven't been on the boards as much with the holidays either...but I am definitely trying to keep up with this one in particular!

Currently, we are 8w5d preggo and everything looks good! We have seen heartbeat several times, and they say our next U/S at 10 weeks should show quite a bit more baby! We are cautiously excited...still can't get out of my mind all the worries...

My journey has been so frustrating with RE's...I feel at every turn I am having to fight for treatment that is standard for people with immune issues...like the lovenox/ASA/metformin/folgard/prednisone regimen. For instance, I went to my RE last week and I mentioned the regimen (approved by his partner after much discussion!) and he said "you're on lovenox?" "Why?" I could have fallen off the exam table...SIGH....anyway, it sometimes just feels like an uphill battle staying up to date, and trying to convince immune not so up to date physicians to stay up to date also.

My biggest wish is to have Dr. Beers in my corner helping form my treatment plans as this pregnancy progresses...but cost is an issue for us. I am also looking forward to having full and complete immune testing done, although the response I keep getting from my RE is "why? you're pregnant now, so let's just keep doing what we're doing!"

UGGH! Thanks for thinking of us preggos...I will definitely try to keep everyone updated...we appreciate your prayers and thoughts so much for this little bean...

Michelle

[LexiGirl]

Congratulations to all of the pg immune gals & gals ttc with immune.....2006 will be your year!

[babymama74]

Mechell- what were your immune issues? I thought the more severe endo you have the less immune issues you have


Merica stage 3 endo (31) 32next week
2failed IVF's

[Lauren2005]

Hello... just in case you're getting that information from my previous post, it's not that the more severe endo you have, the less immune issues you have... it's that the more severe endo you have, the less LIKELY it is that you have additional immune issues (like elevated NK cell activity, etc)... The theory is that a body doing a good job of keeping endo at bay has kicked its immune system into overdrive, so the low-level endo is more often linked to other reproductive immune issues than the severe endo... But remember that endo is now considered an autoimmune disease of its own, so it's still highly recommened that all IF endo gals have full and complete immune testing... Hope that helped to clarify my previous post! Lauren