Nic, I'd love to hear from you

[kcdana]

Dear Nic,

First I want to wish you a Happy New Year!!!!!! I have thought about you a lot over the holidays, so I wanted to check and see how you were doing. I hope you had a wonderful holiday with your family. Please let us all know how you are, you know what mother hens we can be, lol.

God Bless you & yours

kcdana

[Nic_Oz1]

I'm here! I am... Sorry it's taken a while to respond. I hit a bit of a flat spot over the holidays with blood counts and such, chemo was postponed BUT is now back on the agenda

It's been madness with visitors and family and the like, but lovely too I'll get on in the next couple of days and catch you up properly, I promise.

Nic
xxx

[Nic_Oz1]

Sorry it’s taken so long to update. I’m hopeless, eh? Things have just been a little frantic.

Ok. Now, in a nutshell- the chemo knocked my bone marrow around and it went on holidays for a bit, so I had grade 4 neutropenia and had to wait for it to resolve before they would let me start chemo again. I had to go “hermit” because of the infection risk, unfortunately. This meant I had to miss a holiday I had planned to the south coast with my BF and his family, so that was a bit disappointing, BUT I got to have a “girls week” with Georgia, and we had some quality time having our own little holiday at home.

We painted, we cooked, we did craft, we watched movies, we played, we sang and danced, we had a party with her gran, pop and cousin (for no reason other than she wanted one ), we read stories to each other… I was completely exhausted, but we had a ball! I had to palm her off to her gran for a couple of days simply to recover. That’s dismal, I know… but that neutropenia and my headaches were really knocking me around *blush*

Then I had to fly up to Sydney (and back!) on Friday and have an MRI, and am awaiting the report. I have the scans though. It seems there is a large mass in there (around 4 x 2 cm), but I think it might be radiation necrosis from the last SRS I had done rather than a tumour in a growth spurt. I also think I may have spotted a couple of new ones BUT I won’t have the radiologist’s report until around Tuesday, as it’s the weekend and we have a public holiday on Monday, so I’ll just have to bite my nails until then

I had a pretty bad time with the headaches and the neutropenia, but now only have to deal with the headaches, so that’s something!! I’ve been trying not to use pain relief too often, as morphine makes me a little dopey/vague, but I take it in the evening sometimes when the head is usually at it’s worst and I don’t have to worry about being vague while looking after Georgia. I feel much more comfortable about it once she is in bed, and it makes it easier to sleep, so that seems the best way to go for me.

So really, I don’t have much to tell you. I mean, obviously I DO, but I’m waiting on the report and seeing the oncologist next week and discussing treatment options before I have anything concrete to report... No point getting too far ahead of myself, is there?

I’m ok. I’m doing well, actually. I’m still here, I’m still capable of looking after my girl (admittedly only 5 days a week, but I reckon that is a pretty good effort!) and I’m still fighting it with all that I have (I plan on doing that for some time yet, too!!)

Hope all is well with you? How did your support group go, hun? I was so pleased to read your scans were good news!! MWAH!

Nic
xxx

Oh… and a couple of pics of the munchkin (preparing for her "party" and in my BF's shoes- I call her a hobbit because her feet are so darned huge, but she looks like one in his shoes! )

[Bub]

Hello Darling Nic,
I love the pictures, she is such a cutey and soooo pretty, just like her pretty mum (((((hugs)))))) you are one amazing girly! your energy and humour and there is no other words that can describe you sweetie, cos its not been invented yet but if I had to invent the word for you now, it would be something like:-

FABTASTICALLYAMAZINGLYINSPIRINGLYGORGEOUSHEARTEDGI RLINA!!!

and I can so see why they have not invented that word yet, cos like who could spell it in a spell out?
but do you get the picture hon? I think your great! and you are always in my thoughts and prayers and thank you so much for your words whenever I write an update, you always have me smiling and laughing. I only know you from fertile thoughts and Ive never met you darling..but just like I feel for certain other girls on here...I do love you sweetie (((((((((hugs))))))))))

keep on fighting brave girly. we are all here for you always.
love and hugs
Bub
xxxxxxxxx