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  1. #21
    tnahope
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    Renee, use this link
    http://www3.fertilethoughts.com/foru...play.php?f=279 then in left corner towards the top you will see "new thread" click on that. Then post
    Me 37 DH 37
    IVF 1&3 Cancelled~IVF 2 BFN~IVF#4 BFP m/c ~IVF#5 converted to IUI BFN~IVF#6 BFN FET- None survived the thaw BC of the High FSH board






  2. Fer
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    Another Success Story

    I found this story on another website and wanted to share it (this is obviously not my story -- if this wonderful lady is a member of this forum and has already posted it, I hope you don't mind me sharing it here again):

    "Mine was an IVF cycle which was canceled since I only had one follicle so technically it ended up being Ovulation Induction with injectable meds. I'm still glad it was scheduled to be an IVF otherwise I don't think they would have treated me as aggressively as they did when the goal was as many eggs as possible.

    Reason for IVF: low ovarian reserve
    FSH during cycle: 22!
    Number of antralfollicles on CD3: 3
    Projected chance for live birth: less than 1%
    My age: 37
    I was on BCP for 40 days to make sure my cycle was in tune with the projected IVF date of "week of June 3rd". DH and I were also both put on a strong antibiotics at the beginning of stim.
    Planned protocol: 7 vials of repronex IM in the morning, 525 IU of Gonal-F in the evening. I did however have a cyst so they cut it down to 1 vial of repronex and 450 Gonal-F. Later they upped the repronex to first 2 and then 3 vials.
    I stimmed for 16 days due to poor response. My "best" follicle moved out of the ovary and disintegrated. I had to take ovidrel (I think) for 3 days to suppress spontaneous ovulation before my 2nd follicle to get close to 20 mm. At 19 mm they canceled the IVF but I still took the HCG trigger at 6 PM on Thursday night (June 7th) and was told to do BD Thu, Fri, and Sat night with no lube not even saliva and to lay down for at least 15 min after ejaculation. Oh, how romantic! O was estimated to happen 36-40 hours later so Sat June 9th.

    I started PIO shots on June 10th. My first beta was Fri June 22nd at 13 DPO 15 days past trigger. I never asked to get the beta numbers but it was positive! I did not take any HPTs (before the beta that is. I took several AFTER it and saved them all ).

    We also did no alcohol or caffeine for 3 mo prior to the cycle and both DH and I loaded up on extra vitamins. I also stopped working out once I took the trigger shot and didn't go back until I was about 10 weeks PG and then only lightly."
    My Story

    Me (39) DH (35)
    High FSH - (31.4) and High TSH
    IVF # 1 - 9/09 - 1 Egg Retrieved / 1 Embryo Transferred - BFP!
    IVF # 2 - 11/10 - 1 Egg Retrieved / 1 Embryo Transferred - BFN
    IVF # 3 - 7/11 - 2 Eggs Retrieved / 1 Embryo Transferred - BFN
    IVF # 4 and 5 - 0 Eggs Retrieved
    DE IVF at RBA - 9/12 - 6/6 Eggs Fertilized / 1 Blast Transferred / 1 Frostie


  3. #23
    Sam22
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    Hello to all the ladies on this thread. I used to post on here a long time ago, but only for a few days. I live in the UK, and was an active poster on the UK boards, but tried to start posting in the US too to see if there was any info for poor responders \ POFís we could share. Unfortunately I just found it impossible to keep up with more than one site... so I dropped out. I do want to post here now as I feel itís important to share my story. I am 37years old, I have an AMH of 0.1ng\L (0.7pmol) and an FSH of 42, and was diagnosed with POF last year. I had a very early mc in Oct 08, I am now pregnant.

    I had one IVF cycle in April \ May 09- a disaster, not even one follicle. I proved I wasnít a poor responder - I was a non responder. I knew then that IVF was very unlikely to work for me (it rarely does for women with POF, especially the limited protocols in the UK), and I needed to regroup and replan. It has taken me a long time to write this, but I felt I wanted to tell you ladies on this site what has happened since and what I have done in case there is anything that could help others.

    I have tried to put all the information I can into this post, as I know I wonít have much time to answer any PMs. Most fertility websites wonít allow me to post the Drís contact details, but you can google them. Remember the doctors are in London.

    My periods had become increasingly irregular, but I was still ovulating sometimes. I had not had my period since the one brought on in April by stopping the BCP for my IVF cycle, but ovulated in June. For a long time I was terrified of putting this into words, like I will jinx myself and as things started weirdly I was not at all confident.

    Iím 17wks pregnant. I didnít want to post for a long time, as the fact that with POF Iím more likely than the average women to have another mc anyway- but also for others reasons see below, and it started out weakly Ė without me having a period for months!!, and I didnít want to post it or tell anyone.

    I have been completely stressed and worried all day, but as the weeks pass Iím starting to feel less stressed Ė Iím far from confident though. I wanted to tell you all, so I can tell you exactly what I did. I also think itís important to get our stories out there, as it gives others hope.

    I donít know if itís something I did at all, or if it was just plain luck, combined with lots of sex and praying.... as I said Iíll never know if it was just luck. There was another lady with an amh of 0.7pmol and POF here in London on my UK thread (who I know well ) who fell pregnant after a failed IVF so I decided to kind of copy what she did, and now Iím pregnant too. Her thread name is Missyg.

    When my ivf cycle was clearly going to be cancelled due to no response I started taking 100mg of DHEA a day again, which I had stopped months before. I use the DHEA from the CHR in NY, which is very expensive and you have to have a USD300 phone consultation with an RE to even get the prescription. Missyg was using one of the internet brands (from dheainfo.com, she is Missyg on the fertility friends site). I must have ovulated 4 weeks after starting on the DHEA.

    The pregnancy stared weakly. We know roughly when I must have ovulated(due to EWCM and temperature charts Ė and later backdating the pregnancy to ovulation dates), and as sperm can only live up to 72hours, and we hadnít had sex for weeks afterwards. When my period wasnít coming still after so long, I did lots and lots of pregnancy tests, all negative. I was using the first response pg tests which are the most sensitive we have in the UK.

    A positive result SHOULD have shown up days before it did, and even when it did the line was so so so faint, you had to squint to see it, it was barely there. I know that post menopausal women have a small amount of hcg in their bodies, and that that can cause false positives on HPTs Ė I honestly thought that was what it was. I went to Dr Zhai(Chinese dr in London), and she did a hcg test for me. It came back at 42, which for how far along I must have been was very very low.

    I decided to do what Missyg did and went straight to Dr Gorgyís office(immune doctor in Wimpole St) and sat there until he had time to see me. He started me on immunes treatment that day (steroids(prednisolone 25mg per day), baby asprin one per day, and clexane 40mgs per day and 800mg of progesterone suppositories (400mg twice a day), and intralipids drip first thing the next morning). The hcg was meant to double every 2 days, it was 189 2 days later, which meant it went up by 4.5times! This makes me think that it was immunes issues that was stopping me getting pregnant, and when I started the immunes tx things started to go better. Itís started so shakily, that every day I was completely terrified.

    Another thing is I had taken drugs during my failed IVF to lower immunes Ė steroids, asprin, and clexane , then stopped when it failed....as did Missyg. Both of us got pregnant a few weeks after a failed IVF (though missy had a period in between, I did not). I wonder if the immunes tx in our system is what gave the egg a chance to develop. Steriods take a few weeks to leave your system, and both of us fell pregnant within a few weeks of taking them.

    When I had my immune profile done before IVF(Dr Gorgy), the only real problem I had was raised CD19+CD5+ cells, Missy had the same. These can cause POF Ė see links below to Dr Beerís website. Dr Beer believed that cd19+cd5+ cells could attack the eggs as they formed in the ovary, which is why taking it for a number of weeks ďbeforeĒ you intend to add sperm allows the egg to develop.



    http://repro-med.net/info/cat5-2.php

    States one of the consequences of high cd19+cd5+ cells is POF.

    http://repro-med.net/tests/pheninfo.php#cd19b
    http://repro-med.net/tests/pheninfo.php#top>

    I think I may have been pregnant a few times before this, and that it wasnít registering on tests as my immunes were causing very early mc. I remember another time I had the very very faint positive line on a first response test (these are the most sensitive and the only ones I use), but I didnít think it was real so didnít do anything about it. ( and back then I didnít know what to do for immunes or who to see)

    I know I was supposed to stop taking dhea on the second positive pregnancy test, but this time I cut down gradually. I donít think any quick major hormonal changes are a good idea. I did an adrenal stress test (saliva test), and it shows my adrenals are really on the floor.

    There are a lot of doctors who think that dhea supports the adrenals. Missy has been doing a lot of research into adrenal fatigue and itís links to low ovarian reserve, and maybe supporting your adrenals helps your ovaries. Some info on adrenal fatigue here for anyone who is a researcher...

    http://www.drlam.com/articles/adrena...gue.asp?page=2


    Chinese teas Ė I had been off Dr Zhaiís (Chinese Dr Harley St) teas for a couple of months whilst I downregged and did IVF, and I started them again straight after the IVF. Again, Iíd only been on them a few weeks so I donít know if this combined with the DHEA that kicked started my ovaries and made them ovulate a good egg.

    Sex Ė I noticed EWCM, and DH and I had lots of sex Ė every 2nd day, for at least a week afterwards. I think our ďagedĒ ovaries struggle to ovulate, and we take longer to ovulate than normal women or what is indicated by OPKs or even cycle monitoring. Had we been in London I would have done cycle monitoring to know when I ovulated, but we were out of London so I couldnít. I think itís really really important to keep having sex even after OPKs etc ďthinkĒ you have ovulated, I do have some evidence \ personal experience of why I think that we with ďagedĒ ovaries may take longer to ovulated, but I wonít go into that now.

    I want to tell you what I did, in case you can take anything away from this....I really wish I knew if it was something I did, or just plain luck, so I could help others. I hate that any woman should have to go through the pain of infertility, I wish I could find the cure. There is no fairness in the way fertility is handed out. I donít know how often I will be able to check my emails for a while so Iíve really tried to put all I know in this very long note.

    Another thing that may or may not have helped is before my IVF I took the birth control pill for 3 weeks to lower my FSH, remember though that my IVF cycle in April May 08 was a disaster Ė not even one follicle, and it was June when I fell pregnant. Iím not sure if the BCP had an effect or not, but thought Iíd mention it.

    Please please donít be offended if I canít answer any PMs, Iím really sorry but I just donít have the time at the moment..... Iíve really tried to put everything I know into this post.

    The absolute absolute best of luck, big hugs, and baby dust to you all.

    Sam
    [SIZE=1][FONT=Arial]Age 37, DH 37 (now 38)
    AMH 0.1 ugL (0.7pmol)
    FSH 42

    Diagnosed with POF Sept 07

    IVF 2009,cancelled-not even 1 follicle!
    Fell pregnant09, after DHEA and steriods for immunes, pg post failed IVF without having a cycle for months - was it DHEA, immunes tx, DR with BCP or the FSH from IVF? I wish I knew so I could bottle it and give it to every POF woman :-(


  4. #24
    kvans81
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    Hi ladies I'm hoping someone can offer me some advice.

    I just turned 28 last month and was told I have premature ovarian failure. My fsh level is 27 (was last tested in September) and I haven't had it checked again since.

    RE #1 said no chance. Immediately recommended donor eggs & adoption.

    RE #2 said slim chance. Checked my antral follicle count. Right ovary small volume, but left ovary a whole lot better. Left ovary had 4 follicles. 2 were 17mm and 14mm.

    RE #2 said I could possibly try IUI with injectibles, but he wasn't overly optimistic. He said IVF is not an option for me. He explained his reasoning as that the meds contain fsh, so giving me more would not help but hurt.

    Anyone have any advice for me? I'm trying everything in my power to get pregnant using my own eggs. I desperately want to find a doctor who's willing to give my eggs a chance.
    [♥] me: 29 hubby: 33 [♥]
    ttc #1 since 10/08
    furmommy to the cutest Boxer boy


    4/15 & 4/16 - IUI #1
    5/29 - Natural BFP!!!

    If God brings you to it, He will bring you through it


  5. #25
    Sam22
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    Hi,

    You can absolutely try with your own eggs - see my post. you still have follicles on your ovaries so you are in with a chance. I have POF, FSH of 42 on day 3 (I dread to think what my mid cycle FSH would have been as Day 3 is supposed to be it's lowest point!!) and now I'm 25 wks pregnant.

    Have a look at the post I wrote, I tried to put in everything I did. Sorry, I don't really have much time to write tonight, so if you can look up my previous post you will see what I did.

    You can try the CHR for their DHEA - they will likely tell you to try IVF, which you can try, but it is true you are unlikely to respond to "more" FSH. But absolutely use their DHEA - get started on it as quickly as you can!

    You should also have your immunes tested.

    Also, Cornell (Dr Andrew Davies in particular) have experience with high FSH patients, though they favour IVF as a tx, and Dr Check at the Cooper has experience with high FSH and POF patients.

    If you can afford it, I'd also highly recommend immunes treatment \ testing like that recommended in Dr Beers book - "is your body baby friendly". A malfunctionning immune system can cause POF, i think this is what caused my POF, and treating my immunes seemed to help me become and stay pregnant.

    Another thing, you need to have LOTS of sex whenever you have a large follicle (ie are about to ovulate), every second day for AT LEAST a week post ovulation. Treat every follicle as though it's your last egg, as it may well be....

    Good luck!! This is an expensive path, but your young, and you still have follicles, so you are in with a chance. I can't tell you how many times I was given the donor egg speech.
    [SIZE=1][FONT=Arial]Age 37, DH 37 (now 38)
    AMH 0.1 ugL (0.7pmol)
    FSH 42

    Diagnosed with POF Sept 07

    IVF 2009,cancelled-not even 1 follicle!
    Fell pregnant09, after DHEA and steriods for immunes, pg post failed IVF without having a cycle for months - was it DHEA, immunes tx, DR with BCP or the FSH from IVF? I wish I knew so I could bottle it and give it to every POF woman :-(


  6. #26
    kvans81
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    Thank you Sam! Not giving up hope just yet.

    Thankfully we have awesome benefits. As many IUIs as it takes and 4 IVF are covered under my insurance. If all else fails, donor eggs are also covered. So I know it's all still very possible.

    I'll have to look at your original post in more depth later.

    Thanks again!
    [♥] me: 29 hubby: 33 [♥]
    ttc #1 since 10/08
    furmommy to the cutest Boxer boy


    4/15 & 4/16 - IUI #1
    5/29 - Natural BFP!!!

    If God brings you to it, He will bring you through it


  7. #27
    lbattles
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    Hi there,

    I'm new to the board but it was suggested that I visit this forum. I'm 42-years old (quickly approaching 43). I've taken the clomid challenge twice and I am now on my 3rd try. Both times I passed Day #3 but on Day #10 my FSH was between 15-17.7. I've been told to take BCP before my next challenge in order to lower the FSH levels. I'm on Day #5 of my cycle right now. Is it too late to start BCPs? When should these be started? Any information would be greatly appreciated.

    Thanks in advance. ****, this is stressful.


  8. #28
    hhzz0313
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    Hi,

    those are great too look into.. by the way did katie used donar egg or used her own egg? i was just wondering if the RE changed his mind later bc i was lookin at her fsh it is 33.. so it is close to mine

    thank you


  9. #29
    tnahope
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    High FSH and POF
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    hhzz, Katie used her own eggs. You should also check out the "High FSH Moms/PG" thread. go to the very first post, you can read a little about everyone's situation. Also check out the cyclers thread, lots of posting there
    Me 37 DH 37
    IVF 1&3 Cancelled~IVF 2 BFN~IVF#4 BFP m/c ~IVF#5 converted to IUI BFN~IVF#6 BFN FET- None survived the thaw BC of the High FSH board






  10. #30
    Mrs Bunny
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    Good luck to everyone looking for inspiration here.

    it may be a little early to say so, but i have my first positive pregnancy test. i am 39 with highest FSH of 15.5. After 5 failed Clomid cycles, 1 cancelled IVF, 1 failed IVF, this is what we did to prepare our 3rd IVF cycle which has resulted in a BFP:

    Acupuncture and massage with fertility specialist:
    Almost 5 months.
    Usually 1 x week, and 2 x week during stims.
    including 1x after ER.
    including 1x right before ET and 1x immediately after ET.

    Protocol:
    estrogen priming with patches and ganirel*x starting Day 21 before the IVF cycle
    Day 2/3 start of stims, with folli*stim/gon*al 450 + meno*pur 150
    add more ganirel*x to prevent ovulation before retrieval
    doxycycline and medro*l after retrieval
    progesterone support

    Supplements:
    standard Prenatal vitamin (without vitamin A) including DHA 300mg.
    DHEA (drugstore brand) 50mg/day for 5 months, increased to 75mg/day during stims.
    CoQ10 200mg / day for 3 months, increased to 400mg/day during last cycle.
    L-Arginine 1000mg
    Royal Jelly
    Anti-oxidants: Reservatrol (grape extract), Pycenegol (pine extract)

    Diet: no caffeine, no alcohol, organic meat/eggs/dairy/oil/butter at home, lots of brassica vegetables (cauliflower, broccoli) and fruits.

    Exercise: accupuncturist-recommended pelvic exercises during the follicular phase to stimulate growth, and walking outdoors every day.

    Extras: BBT, basal temperature charting, just for peace of mind.


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