turners syndrome

raytw · 02-16-2005, 08:30 AM

just scanning the boards seeing if anyone else has turners syndrome

playitagainsam · 02-16-2005, 08:52 AM

No, I don't, but I know a little about it. I'm surprised you are checking here--I thought Turner's caused ovarian/uterine failure in 100% of people with the "disorder." Is that not true? I'm interested!

Jessica

gijojo · 02-16-2005, 09:42 AM

I do not have it but I too understood it to cause sever reproductive problems. There was a baby in the NICU with it when my grils were born several years ago. She had a very severe case of it, the nurses let me read the "clinical description" that had been given to them by one of the doctors. They had the baby in the NICU for the required 72 hours so the little girl would receive the state funded NICU follow up program & be eligible for services....that was one of the things that made me love my hospital & peri practice...

raytw · 02-16-2005, 10:34 AM

most turners babies that are born live normal happy healthy lives with very little complications except fertility problems and shortness of stature, 10% to 20% can have children on there own, must do have problems having children thought. most turners women do not have there own eggs.

however, with ivf and donor eggs some are able to carry a child on there own. there are a lot of unanswered questions and a lot of research that needs done.

my husband and i went through ivf last april, unfortunately, i miscarried at 6 weeks. it was found that i had some blood clotting issues.

thanks for replying

playitagainsam · 02-16-2005, 11:10 AM

No, thank you. I teach special education, and try to keep current on information regarding various disorders and disabilities. Although Turner's is not associated with cognitive delay, I did serve a student one who had both Turner's and a cognitive delay due to maternal alcohol and drug abuse (thanks mom!).

Good luck on your pregnancy quest!
Jessica

sallymay101 · 02-16-2005, 11:54 AM

I know we spoke on the other boards, but I thought I'd say hi again.

My IM said she's going to try to get in touch with you but I don't know when that will be.

Have you found anyone else with Turner's?

raytw · 02-16-2005, 12:26 PM

playitagainsam

turners people are, in fact, know to have high intelligance and creativity - i was actually in a talented and gifted program all through school

hi crissy, good to hear from you again. how is the pregnancy going? good i hope. my sister-in-law actually has a baby due march 27th! i will be an aunt for a fourth time :0)

i have talked to some very nice people. none that actually have turners though-some that have had babies or embryos with it

can't wait to talk to your im - she could email at rar104@aol.com if she is more comfortable

02-16-2005, 08:30 AM	#1 (permalink)
raytw 1000-4999 post queen of hearts Join Date: Dec 2004 Posts: 1,976	turners syndrome just scanning the boards seeing if anyone else has turners syndrome

02-16-2005, 08:52 AM	#2 (permalink)
playitagainsam Registered User Join Date: Aug 2004 Location: Portland, OR Posts: 865	No, I don't, but I know a little about it. I'm surprised you are checking here--I thought Turner's caused ovarian/uterine failure in 100% of people with the "disorder." Is that not true? I'm interested! Jessica __________________ me 26, dh 35 IF issue: severe male factor dd Ryan Julia, 3 1/2 years old donor IUI October 13, '04--BFP!!! EDD 7/7/05 IT'S A GIRL!!! Wyatt Olivia

02-16-2005, 09:42 AM	#3 (permalink)
gijojo 5000-9999 post king of hearts Join Date: Jan 2002 Location: OH...but my soul is still in AZ. Posts: 5,001	I do not have it but I too understood it to cause sever reproductive problems. There was a baby in the NICU with it when my grils were born several years ago. She had a very severe case of it, the nurses let me read the "clinical description" that had been given to them by one of the doctors. They had the baby in the NICU for the required 72 hours so the little girl would receive the state funded NICU follow up program & be eligible for services....that was one of the things that made me love my hospital & peri practice... __________________ JO aka Joann A & Z, 1/1/2002 at 30w--now 7 years old....WOW!

02-16-2005, 10:34 AM	#4 (permalink)
raytw 1000-4999 post queen of hearts Join Date: Dec 2004 Posts: 1,976	hi most turners babies that are born live normal happy healthy lives with very little complications except fertility problems and shortness of stature, 10% to 20% can have children on there own, must do have problems having children thought. most turners women do not have there own eggs. however, with ivf and donor eggs some are able to carry a child on there own. there are a lot of unanswered questions and a lot of research that needs done. my husband and i went through ivf last april, unfortunately, i miscarried at 6 weeks. it was found that i had some blood clotting issues. thanks for replying

02-16-2005, 11:10 AM	#5 (permalink)
playitagainsam Registered User Join Date: Aug 2004 Location: Portland, OR Posts: 865	No, thank you. I teach special education, and try to keep current on information regarding various disorders and disabilities. Although Turner's is not associated with cognitive delay, I did serve a student one who had both Turner's and a cognitive delay due to maternal alcohol and drug abuse (thanks mom!). Good luck on your pregnancy quest! Jessica __________________ me 26, dh 35 IF issue: severe male factor dd Ryan Julia, 3 1/2 years old donor IUI October 13, '04--BFP!!! EDD 7/7/05 IT'S A GIRL!!! Wyatt Olivia

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02-16-2005, 11:54 AM	#6 (permalink)
sallymay101 Registered User Join Date: Apr 2004 Posts: 2,866	Hi (again) :) I know we spoke on the other boards, but I thought I'd say hi again. My IM said she's going to try to get in touch with you but I don't know when that will be. Have you found anyone else with Turner's?

02-16-2005, 12:26 PM	#7 (permalink)
raytw 1000-4999 post queen of hearts Join Date: Dec 2004 Posts: 1,976	hi playitagainsam turners people are, in fact, know to have high intelligance and creativity - i was actually in a talented and gifted program all through school hi crissy, good to hear from you again. how is the pregnancy going? good i hope. my sister-in-law actually has a baby due march 27th! i will be an aunt for a fourth time :0) i have talked to some very nice people. none that actually have turners though-some that have had babies or embryos with it can't wait to talk to your im - she could email at rar104@aol.com if she is more comfortable

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