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  1. #1
    DMS721
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    Cystic Fibrosis

    Just curious if anyone here has a child with CF? The doctors think Zachary may have this. They tried to do the sweat test when he was hospitalized last week ( for the 4th time), but he was too dehydrated and could not get enough of a sample to test. He is going in for the test later this week. I've googled far too much information......

    Dawn



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    PrincessBride
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    No words, just ((((hugs))))
    ~PBH~
    Mommy to a Grasshopper, Fairy and a Butterfly
    *Angelita Marie held in Grandma's arms until I come home & Precious Brother resting with them in the presence of Jesus*


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    JanetOH
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    There is a woman on here who has 2 boys with it...can't remember her name. She has 4 kids...maybe she will find this. I will try and search for her...I think she lives in Chicago.
    Janet
    Aaron & Andrew 11/16/00


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    JanetOH
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    Here is a link to a thread where people were talking about CF:

    Who is knowledgeable on Cystic Fibrosis?

    The name of the mom with 2 kids with CF is AnnMarie. You could try sending her a private message and see if she responds.

    Good luck!
    Janet
    Janet
    Aaron & Andrew 11/16/00


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    DMS721
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    Thank you. I will send her a message.

    Dawn



  7. #6
    SC-Sherb
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    Dawn thinking of you guys today. I think Zachary is having the tests done today and I'm praying that everything is good. Please update when you know something.
    Me 44/DH 44 Celebrating 22 yrs of marriage!!!

    DS#1 - August 31, 1993 (21)
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    DS#2 - August 25, 2008 (6)

    2 - both at 10 weeks (1989 & Oct/07)


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    DMS721
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    He had the test this morning. He slept through the whole thing. The lab tech said she would fax the results to his pedi this afternoon. I already called his pedi and asked that she call me with the results either way.

    Dawn



  9. #8
    DMS721
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    His dr. just called. The test came back negative. What a huge relief!

    We still don't have many answers as to what is causing all of his issues. Next up is a consult with a pedi pulmunologist at Children's Hospital.

    Dawn



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    KimAtFertilityAuthority
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    So glad for the relieving news. Good luck at the next appt. It breaks my heart to see LOs dealing with illness. Hang in there, mama!
    Wanna chat directly? I'm happy to share experiences and recommendations!
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  11. #10
    zaworas
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    Dawn so thinking of you tonight!!!
    So glad it's not CF, but unfortunately this means more tests and no Answers yet. Your a wonderful and strong mom so stay strong
    Casey





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