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Endometriosis If you have endometriosis or it is an issue you are concerned about, come visit this forum to ask your questions and get support. We have a lot of experienced "endo-sisters" here, ready to lend a hand, an ear and a shoulder.

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Old 11-01-2009, 04:05 PM   #1 (permalink)
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Join Date: Mar 2009
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secretv2 Level 1
Question SEVERE Pain Endometriosis and Cysts Again!

Hello,
I have been suffering with Endometriosis and Cysts for Five years. I had Laparoscopy 06/08 Diagnosed with Stage 4 Endo, Right Tube Blocked and Removal of two Chocolate Cysts.

For the past few months, I began to feel weak, crampy, tired etc... A few days ago I was woken from my sleep in EXTREME uncontrollable pain for 3 hours.

I went in to see my RE and he did an Ultra Sound and found that the Endo was back and possible Cysts. I am now waiting on an MRI to confirm the results. My RE mentioned to me and my DH that surgery was in my future again and now TTC was on hold. HELP! Any advice?

I am so tired of this. Endometriosis and Cysts have become a nightmare for me. The pain was so bad! Never in my life had I ever felt pain like that before. It seems that the pain got worse since the last time before my surgery and that was bad. After my last surgery my obgyn mentioned to me that getting pregnant soon would be beneficial beneficial because a Hystoretomy was in my future.

Blessings,
secretv2

__________________
Me (31) DH (39)
TTC Since 04/2005
(1) Failed Adoption 01/2008
DX - Me-PCOS, Rt. Tube Blocked & Stage 4 Endo/ DH-Varicocele
Me-Surgery/Laparoscopic 06/08 (2) Complex Choc Cysts & Stage 4 Endo HSG During Surgery DX-Blocked Tube
DH-Surgery/Microsurgical Approach 04/09 Varicocele/Varicoceletomy
Me-10/09 Endometriosis Back
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Old 11-01-2009, 05:40 PM   #2 (permalink)
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Join Date: May 2009
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hope2bpregnant Level 1
Secret, I am so sorry for your pain...hugs!

I also have endo, don't know what stage...had a laparascopy in 04/09...never knew I had endo, no pain or anything else to suggest that something is wrong.

I hope your pain resolves soon and you're back on your way to ttc.

Marianne
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Old 11-02-2009, 09:03 AM   #3 (permalink)
BC: Endo, PG Loss & Gyn Procedures
 
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I'm so sorry...it sounds as if you may have had a cyst rupture. The pain from that can be awful! Endo is a terrible disease...it steals so much from our lives.

I think surgery is most likely the right direction as your doctor suggested. Another lap perhaps to remove as much of the visible endo as possible and then you might want to ask your RE about treatment with Depot Lupron to shrink any remaining endo before attempting to conceive. This will help boost egg quality and improve uterine lining as endo can effect both of those issues also.

I'm sorry you are going thru this and wish you best of luck. I hope that you are able to find a plan that will bring you success!!
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Shelli~ TTC #2 for 10 years until my body gave out...
Dx: Chronic Endo/Adenomyosis.....Hysterectomy/LSO 3/9/02......Lap/RSO 12/9/04
Mom to my *One-derful* Lindsay 11/9/90 and Michaela...Heaven Born at 8 weeks pregnancy 4/25/94


"I knew you before I formed you in your mother's womb" Jeremiah 1:5

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Old 11-03-2009, 05:07 PM   #4 (permalink)
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BC-InfantryWife627 Level 1
Question what made you realize you had endo the first time. I was told I have hydros on both tubes, but i have been trying to figure out this insane lower abdomen pain, and now wondering if its more.. I have regular periods.. No u/s has been done... maybe i should get one done...
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Me= 23 DH=28
TTC = 3 years
April 2008 =M/C
October 2008= Chlomid
May 2009= HSG Diagnosis:Hydrosalphinx (1.3 cm) on BOTH tubes
October 2009= S/A #2 = Results Normal
Dec 2009= IVF Class/Consult with Dr. P- Tubes are staying!
IVF #1= March Womack(Cancelled)
IVF#2= September/Octoberish? (Womack or Civilian)
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