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  1. #1
    twinkle3
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    Pelvic congestion/varicose veins on uterus

    Has anyone here ever heard of varicose veins on your uterus? I have been struggling with endo for six years. I have been having alot of pain lately and my lap showed no signs of endo. When sent to a pelvic pain specialist, he told me I had a huge varicose vein on the right side of my uterus. He said to treat it, we would use progesterone pills or Lupron. I have heard many many horror stories of women on Lupron. I have heard the side effects are hellish, and it wreaks havoc for years to come. I am also still hoping to have a baby and I have heard the Lupron has also affected fertility. I am just searching some forums to see if anyone has any info about this condition or the treatments associated with it. If anyone can give me any info so that I can make an informed decision about my course of treatment, I would really appreciate it! Thanks ladies!



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  3. #2
    BC-Shelli
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    BC: Endo, PG Loss & Gyn Procedures
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    I've never heard of varicose veins on the uterus, but I am very familiar with Lupron. I've been treated with Lupron three times for endometriosis. The side effects were not fun, but tolerable. I had hot flashes, headaches, and mood swings. You can do add back therapy to help with the side effects. Lupron is really not the horror story that some make it out to be, and many women have gotten pregnant afterwards.
    Shelli~ TTC #2 for 10 years until my body gave out...
    Dx: Chronic Endo/Adenomyosis.....Hysterectomy/LSO 3/9/02......Lap/RSO 12/9/04
    Mom to my *One-derful* Lindsay 11/9/90 and Michaela...Heaven Born at 8 weeks pregnancy 4/25/94


    "I knew you before I formed you in your mother's womb" Jeremiah 1:5



  4. #3
    ginav
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    Endo and pelvic congestion

    I know this post was from a couple years ago but for anyone looking for info on this topic I have some personal experience I can share...
    I had a lap 2 weeks ago to excise a couple pelvic veins that were enlarged and VERY painful, as well as remove endometiosis adhesions. It was pretty painful but I've been in pain so long now that it was a welcome 'different pain'. I went on Lupron for 6 months at the beginning of next year but a few months, as expected with pelvic congestion, the pain was back and 6-7 months after I was back to where I started - my MD assumed the endo was back.

    I agree, Lupron wasn't that bad for me but everyone is different. It was my only option as I couldn't do surgery in my last year of pharmacy school.
    I would highly recommend seeing a pelvic pain specialist, that'd the only way I got my issues resolved!
    Good luck!


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