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  1. #1
    Greekmom
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    I'm sad, and I really hate endo.

    I had my pre-op this morning, and I do feel good about this specialist, and I liked his nurse today too. The closer it gets, even though I'm a veteran, it still makes me nervous.

    I guess, I hate endo! We talked a little more indepth today, regarding my last visit. I had asked why my right side was so painful and why it was painful when he did the internal. He said my right uteral sacral ligament is short (thinks it is stuck to something) and that he could feel nodules. So, he will be doing a resection on that, plus excision on all endo he finds. He will do a video lap with pictures of diseased area's, expects 3-4 incisions and 2+ hours of surgical time. Also, this is different than any other time and he is doing more, but it is at a surgicenter. Kinda gave me the heebie jeebies, as I'm used to a hospital. I know they thought I was crazy when I asked what if there are complications? Well, they are set up for that, but if you have to stay they transport you to the hospital across the street.

    Back to the endo, we talked about my spotting and 7-10 periods (so I am bleeding or spotting for 12-14 days). I was asking if that was endo or what? He isn't sure, said it could be adenomyosis too. So, he will do a hysterescopy to look for polyps and a uterine biopsy to check for adenomyosis.

    This is the part that really made me sad, but I've decided against it. He had said bleeding 14 days isn't really fun or healthy. He had recommended an endometrial ablation. Well, even though my tubes are tied and I have no plans for more children. I had my tubes tied knowing that if any catastrophic life status change occurred, I could still conceive via IVF. If I went that route, I might as well have a hysterectomy which I'm not ready for (obviously). So, I've decided I'm not consenting to the ablation, but I'd like the biopsy as that my give us some answers as to whether I'm dealing with other issues too.

    At my post-op appointment we'll discuss lupron or continous bcp. Though, he did say he had just read an article about something other than Lupron. Does the same job but not the horrific side effects. THAT was music to my ears.

    Thanks for always being there!

    Tamee
    Last edited by Tamee; 05-27-2005 at 07:26 PM.
    IUI
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  3. #2
    Tami
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    HUGS HUGS HUGS!!!
    I hear you on hating Endo!!! I'm sorry to hear that you have to go through so much for this darn disease!! So not fair!!! You're bleeding/spotting time is very similar to me before I had my last lap. I would spot for 4days and then bleed HEAVY for 3 and then dwindle down for another 5days. 12 total. UGH!! So not fun. Glad to hear he is checking into that and hopefully going to find you some answers.

    I can understand not wanting the ablation (even though I'm not real sure what that is). Sounds too permanent. Better to find out what's wrong and go from there.

    Sending lots of hugs and prayers!!
    Tami
    Tami
    J & S 7yrs
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  4. #3
    Lauren2005
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    Tamee,

    It's so good that you've educated yourself about endo to such an extent. Don't we know that all kinds of women out there (especially ones who haven't even found this board) are so overwhelmed by the endo diagnosis, and have no idea what to do when confronted with some of these issues. It sounds like you have expansive knowledge and a solid sense of yourself that allows you to make decisions quickly and with confidence (albeit sadness, too.) I really applaud you for this.

    I'm so sorry that you have to go through all this. I've never heard of this surgery being performed at the type of place you've described, but in this malpractice-heavy society, they must be pretty darn sure of themselves in terms of readiness for complications. So, no worries.

    I'll be out of state this weekend but will be thinking of you and wishing you all the best for your surgery. It's on Tuesday, right?

    I hate endo, too.

    Lauren


  5. #4
    BC-Shelli
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    I've been thinking of you most of the night....your words about the spotting being connected to adenomyosis rang a bell with me. While my gyn never confirmed it, he did suspect that could have been the reason why I had spotting and long AFs, I don't know why I didn't recall that until now. Mainly I associated adeno with the amount of AF pain I had.....which was the reason for the hyst in the first place. I'll be interested to see what your uterine biopsys find.

    It sounds like both your doctor and his staff are wonderful and know exactly what they are doing...and that you will be in wonderful hands. You have a lot of facts and unknowns ahead of you.....just take it one day at a time....starting with the surgery. I agree ablation is a huge step....and in your shoes I wouldn't even consider it right now....wait and see what turns up with the lap. Talk the results over with this doctor and your regular gyn and go from there......

    Take care hun....and try to have a relaxing weekend as you possibly can.... PM any time......
    Shelli~ TTC #2 for 10 years until my body gave out...
    Dx: Chronic Endo/Adenomyosis.....Hysterectomy/LSO 3/9/02......Lap/RSO 12/9/04
    Mom to my *One-derful* Lindsay 11/9/90 and Michaela...Heaven Born at 8 weeks pregnancy 4/25/94


    "I knew you before I formed you in your mother's womb" Jeremiah 1:5



  6. #5
    motherofpugs
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    Gir- I hate endo too! Good luck on the procedure. Did your Adenomyosis have any effect on your pregancies? I have endo and Adenomyosis too, and had 2 miscarraiges last year. I wonder if the Adeno had anything to do with it...?


  7. #6
    Greekmom
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    Thanks for the replies, it all sounds so familiar.

    Tami, your cycle that you mention is exactly what happens to me. It isn't heavy, but it is just long.

    Lauren, I have done a lot of research in the past few years on this subject. Each time it seemed to be worse after my lap, I'd research more.

    Shelli, Thanks for always being there! I'm actually glad that they can do a test for Adno, most people think they can't until they do a hysterectomy, but they can do a biopsy and sample the tissue. Since I'll be asleep it won't be painful. At least this would tell me that definitely a hysterectomy is in my cards down the road.

    Motherofpugs, He suspects I may have this. I don't think I did when I was ttc my kids and I have had a M/C and an ectopic but neither was the result of this. I've read that more often adenomyosis occurs after childbirth and in your 30-40's.

    My issues started 10 years ago when I started ttc. I had problem periods but went on bcp for 8 years. It has been downhill from there as I haven't been on anything.

    This Dr is very knowledgable and based on our conversations yesterday, he stays up to date on the latest and greatest. It is his sons passion too.

    For those wondering what an endometrial ablation is. They burn the uterine lining, and while you could still get pg, it would make it almost impossible to carry a baby. I am not consenting to this. It is often an alternative to a hysterectomy for woment hat have heavy bleeding. Mine isn't heavy, just prolonged.

    Thanks again. I will be having a good weekend. My b-day is tomorrow and we are going to PF Changs tonight with friends, and family celebration tomorrow! Monday is the dreaded afternoon bowel prep.



    Tamee
    IUI
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    Birthday Surprise


  8. #7
    itslife
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    Tamee,
    Endo leaves us with such tough decisions to make and to top it off there is always too many different choices that lead to too many different outcomes. Sometimes I think it would be easier if the md would just say this is it and this is what we do...
    But thankfully we do have choices, just why so many.
    Good luck
    Jessica


  9. #8
    Sarah66
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    Big hugs Tamee. I am thinking of you as you go to surgery. I was away for the weekend, so I hope it is not too late for me to give you cyber-hugs!!! I am looking forward to hearing from you after the surgery, when you are up to it. Being on this road stinks, and I hate it too, and hate it for all those who suffer with this affliction. I hope you get some answers and lots of relief.
    Sarah66
    mommy to 2 wonderful kids! I can't believe how fast this goes Who hit the warp drive button?
    Ds age 12, Dd age 9

    Mom to a special needs child--my amazing, funny, tenacious dd!


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