This Cannot Be Happening...

Hopeful39 · 10-01-2007, 07:25 PM

After 12 months on a donor list, I finally got the call that a match had been found. I'm on BCP's now for 3 weeks, donor should have gotten her period this past weekend. All I needed was my yearly mammo and pap. Well, I went for my mammo on 9/12 and got called back for nodular density. Got my appt pulled up to 9/27 (from 10/11...after all, there was absolutely nothing to worry about and I was NOT on the urgent call back list)...well 8 more images and a sonogram later and I am scheduled for a Sterotactic Guided Biopsy tomorrow. They are just not sure. They can't see edges due to the density and obviously it is a change from last year. Nothing showed up on the sonogram.

I cannot tell you how I feel. I am so scared and out of my mind with worry. Of course for the obvious reason, but also with the thought of knowing if this is not good, my dreams will be shattered for good. All I keep hearing are the odds, but somehow, odds have never worked in my favor and I am just scared to death.

Any words of encouragement??? Any personal experience with this. HELP ME.

acy · 10-01-2007, 07:57 PM

No experience with this -- only words of encouragement. When we first started with IVF, there was a laundry list of things wrong with me -- hypothyroidism, then a possibly unusable uterus, then the doc said my uterus sits at a very odd angle, then my cervix was oddly shaped. It seemed as if my body was plotting against me.

When my doc took a closer look at my uterus, he found that it was bicorneate with a very small dip (with only a 10 percent chance of it being a problem during pregnancy) as opposed to septate, which carries much higher risk of miscarriage.

Hang in there and see it through. Doctors aren't always right on the first check, especially if he hasn't had a good look yet. He's probably just trying to rule out something worse than what it actually is.

Hugs, and take care.

--------------------------------------------------------
Me 28 DH 30
Diagnosis: POF 10/05
Trying for 2 years
1st IVF-DE transfer 9/20/07 - 5dt of 2 blasts - BFP!!!!!!!!!!! - 4w2d
1 blast on ice
Donor: wonderful sister

10-02-2007, 07:50 AM

Hi hopeful --

I too have had to go through this -- am still going through it -- and want to reach out to you and reassure you. In the midst of IUI/IVF cycles over a year ago, I had to have a lump biopsied and they found some abnormal cells. I knew from breast self exams that the lump had been there for years so I wasn't too alarmed about it at first.

The biopsy procedure wasn't much fun, but it wasn't too bad either.
Afterward I saw an oncologist who said the mass wasn't malignant, but that he wanted to keep an eye on it annually. Apparently there are different phases of cell abnormality, and these cells were in a relatively benign phase. However, I learned that it might change in time. So I'm really, really glad they tested it.

So now that I am about to start a DE cycle, I am getting another mammo next week. I also have a follow up with the oncologist, and I assume he'll want another biopsy just in case. If they decide they want to take the mass out of there, I want to have time to recover before the DE cycle.

I know how scared you feel, but please be reassured! Chances are your biopsy will come back normal and you'll have no problems. But even if the results are not normal, the situation need not be dire, and your dreams need not be shattered! In between the absolute best news and the worst news there is a LOT of safe middle ground! And the medical professionals are working for you and watching our for your health.

Hang in there, and keep posting! I will be here for you.

Kat

10-09-2007, 06:18 AM

Hello hopeful, are you okay? Please post when you have a chance!

mommawantabe · 10-09-2007, 04:08 PM

Ok, here's my experience. I always had a small lump in my breast which showed up in mammos. My ex-md husband diagnosed it as just a cyst and I went on with life.

After the divorce my MD wanted me to get it checked out which involved a biopsy. I was terrified. it turned out to be a benign cyst.

Right before my current cycle (had ET on 10/6) my gyno wanted me to have a mammo to make sure everything was alright before I started the cycle. I got a call from the mammo dr's office and they were concerned about something they saw on the same breast. I told them I'd been through this before and that I'd get the results to them.

I am not about to go through another biopsy because I am fairly certain that they are seeing the same cyst that resulted in the first biopsy

It is a terrifying experience, but I'll tell you what I am glad I had the biopsy even if it was unnecessary because I always wondered whether that little bump was cancer. The biopsy reassured me.

I will follow up and send them the results of the last biopsy though just to cover all my bases.

What ever they are seeing in your mammo may be nothing to worry about, but it is best to know one way or another.

Wishing you the best,

momma

Hopeful39 · 10-16-2007, 10:21 PM

Thanks for checking in. I have not been on the board since my last post. Whatever was there was G-O-N-E. It was most likely a cyst. I'm thinking of following up with a surgeon to have him review the films. I find out this Friday, if I will start my Lupron. Looking toward an early November transfer.

10-17-2007, 05:11 AM

That is excellent news!
My lump seems to have vanished as well...
best of luck to you,
Kat

Hopeful39 · 10-21-2007, 07:40 PM

So far everything has been backed up, due to the secondary recipient on my shared cycle being way behind. I've been on active BCP's for 6 weeks already. Don't mind not getting AF, though. We really wanted to do a cycle alone, but found out that we were supposed to let them know "ahead of time". What exactly is ahead of time, we still have not gotten the answer to that. But, hopefully, she will produce well. She has never stimmed before. She is only 24, so I am hoping for lots of good eggs.

I wish you luck with your cousin's eggs. I wish I had a person close enough to ask to donate, even though I know DH would have issues, but when you are faced with the possibility, I am sure things are looked at very differently. If I had a sister, I can tell you right now, I'd be putting up one major argument to use her eggs (if she agreed).

I have a friend who gave birth to a baby boy in Feb using sister's eggs. While she was still pregnant her sister did another cycle for her and they froze 5 embies. She just had an FET with two embies transferred (only 2 to make it, and is pregnant again. So far her number are looking good. Her sister is 38.

I am not HOPEFUL 39 anymore....I am 43 now. UGHH. I do have an 18 year old son, thank God. He is in college now. My DH and I got married in 2002, conceived naturally after a few months, and had a miscarriage. 5 IUI's and 4 IVF...nothing at all. This is our last hope.

When do you think you are going? I think my transfer should be sometime in the middle of Nov.

Hope to hear from you soon,
Nancy
HOPEFUL43 and counting!

10-23-2007, 05:20 AM

Hi Nancy!

Thanks for the PM!

I'm sorry you didn't get a chance to do that cycle on your own -- cycles do take so long to get set up -- but after that mammo scare, I am so glad you are cleared to cycle in November! I hope and pray that your cycle will work for you and you will have the second child you have been longing for!
Will your older son be thrilled to have a little sibling? I would have been at his age.
I'm also 43, and have been through both IUI and IVF. Finally got off that rollercoaster and this will be my first donor cycle. I'm so grateful that my cousin has offered to help. I didn't grow up knowing her, and until now I had no idea what a loving, caring, giving soul she is!
Thanks so much for sharing the story about your friend whose sister donated for her... My cousin is the same age as the sister, so you have given me more hope!
I am on BCPs now, and my cousin will probably start stimming in about 3 weeks. We hope to have a transfer around Thanksgiving.
Will you join us on the November donor cycle thread?
http://www3.fertilethoughts.com/foru...78#post5154578

Best,
Kat

Hopeful39 · 12-04-2007, 06:36 PM

Hi Kat,

I don't get on the site often, but see that you should be ready for that transfer. I"M SENDING STICKY THOUGHTS YOUR WAY. Hang in there...Hope to hear good news soon. Nancy

10-01-2007, 07:25 PM	#1 (permalink)
Hopeful39 Registered User Join Date: Dec 2003 Posts: 57	This Cannot Be Happening... After 12 months on a donor list, I finally got the call that a match had been found. I'm on BCP's now for 3 weeks, donor should have gotten her period this past weekend. All I needed was my yearly mammo and pap. Well, I went for my mammo on 9/12 and got called back for nodular density. Got my appt pulled up to 9/27 (from 10/11...after all, there was absolutely nothing to worry about and I was NOT on the urgent call back list)...well 8 more images and a sonogram later and I am scheduled for a Sterotactic Guided Biopsy tomorrow. They are just not sure. They can't see edges due to the density and obviously it is a change from last year. Nothing showed up on the sonogram. I cannot tell you how I feel. I am so scared and out of my mind with worry. Of course for the obvious reason, but also with the thought of knowing if this is not good, my dreams will be shattered for good. All I keep hearing are the odds, but somehow, odds have never worked in my favor and I am just scared to death. Any words of encouragement??? Any personal experience with this. HELP ME.

10-09-2007, 04:08 PM	#5 (permalink)
mommawantabe 0-99 post 2 of hearts Join Date: Aug 2007 Posts: 59	My experience Ok, here's my experience. I always had a small lump in my breast which showed up in mammos. My ex-md husband diagnosed it as just a cyst and I went on with life. After the divorce my MD wanted me to get it checked out which involved a biopsy. I was terrified. it turned out to be a benign cyst. Right before my current cycle (had ET on 10/6) my gyno wanted me to have a mammo to make sure everything was alright before I started the cycle. I got a call from the mammo dr's office and they were concerned about something they saw on the same breast. I told them I'd been through this before and that I'd get the results to them. I am not about to go through another biopsy because I am fairly certain that they are seeing the same cyst that resulted in the first biopsy It is a terrifying experience, but I'll tell you what I am glad I had the biopsy even if it was unnecessary because I always wondered whether that little bump was cancer. The biopsy reassured me. I will follow up and send them the results of the last biopsy though just to cover all my bases. What ever they are seeing in your mammo may be nothing to worry about, but it is best to know one way or another. Wishing you the best, momma

10-21-2007, 07:40 PM	#8 (permalink)
Hopeful39 Registered User Join Date: Dec 2003 Posts: 57	I'm doing DE in November too! So far everything has been backed up, due to the secondary recipient on my shared cycle being way behind. I've been on active BCP's for 6 weeks already. Don't mind not getting AF, though. We really wanted to do a cycle alone, but found out that we were supposed to let them know "ahead of time". What exactly is ahead of time, we still have not gotten the answer to that. But, hopefully, she will produce well. She has never stimmed before. She is only 24, so I am hoping for lots of good eggs. I wish you luck with your cousin's eggs. I wish I had a person close enough to ask to donate, even though I know DH would have issues, but when you are faced with the possibility, I am sure things are looked at very differently. If I had a sister, I can tell you right now, I'd be putting up one major argument to use her eggs (if she agreed). I have a friend who gave birth to a baby boy in Feb using sister's eggs. While she was still pregnant her sister did another cycle for her and they froze 5 embies. She just had an FET with two embies transferred (only 2 to make it, and is pregnant again. So far her number are looking good. Her sister is 38. I am not HOPEFUL 39 anymore....I am 43 now. UGHH. I do have an 18 year old son, thank God. He is in college now. My DH and I got married in 2002, conceived naturally after a few months, and had a miscarriage. 5 IUI's and 4 IVF...nothing at all. This is our last hope. When do you think you are going? I think my transfer should be sometime in the middle of Nov. Hope to hear from you soon, Nancy HOPEFUL43 and counting!

12-04-2007, 06:36 PM	#10 (permalink)
Hopeful39 Registered User Join Date: Dec 2003 Posts: 57	Gook Luck Hi Kat, I don't get on the site often, but see that you should be ready for that transfer. I"M SENDING STICKY THOUGHTS YOUR WAY. Hang in there...Hope to hear good news soon. Nancy

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10-01-2007, 07:57 PM	#2 (permalink)
acy Registered User Join Date: Aug 2007 Location: California Posts: 110	No experience with this -- only words of encouragement. When we first started with IVF, there was a laundry list of things wrong with me -- hypothyroidism, then a possibly unusable uterus, then the doc said my uterus sits at a very odd angle, then my cervix was oddly shaped. It seemed as if my body was plotting against me. When my doc took a closer look at my uterus, he found that it was bicorneate with a very small dip (with only a 10 percent chance of it being a problem during pregnancy) as opposed to septate, which carries much higher risk of miscarriage. Hang in there and see it through. Doctors aren't always right on the first check, especially if he hasn't had a good look yet. He's probably just trying to rule out something worse than what it actually is. Hugs, and take care. -------------------------------------------------------- Me 28 DH 30 Diagnosis: POF 10/05 Trying for 2 years 1st IVF-DE transfer 9/20/07 - 5dt of 2 blasts - BFP!!!!!!!!!!! - 4w2d 1 blast on ice Donor: wonderful sister

10-02-2007, 07:50 AM	#3 (permalink)
hoping2bmamaKat Guest Location: NY, US Posts: n/a Blog Entries: 37	Hi hopeful -- I too have had to go through this -- am still going through it -- and want to reach out to you and reassure you. In the midst of IUI/IVF cycles over a year ago, I had to have a lump biopsied and they found some abnormal cells. I knew from breast self exams that the lump had been there for years so I wasn't too alarmed about it at first. The biopsy procedure wasn't much fun, but it wasn't too bad either. Afterward I saw an oncologist who said the mass wasn't malignant, but that he wanted to keep an eye on it annually. Apparently there are different phases of cell abnormality, and these cells were in a relatively benign phase. However, I learned that it might change in time. So I'm really, really glad they tested it. So now that I am about to start a DE cycle, I am getting another mammo next week. I also have a follow up with the oncologist, and I assume he'll want another biopsy just in case. If they decide they want to take the mass out of there, I want to have time to recover before the DE cycle. I know how scared you feel, but please be reassured! Chances are your biopsy will come back normal and you'll have no problems. But even if the results are not normal, the situation need not be dire, and your dreams need not be shattered! In between the absolute best news and the worst news there is a LOT of safe middle ground! And the medical professionals are working for you and watching our for your health. Hang in there, and keep posting! I will be here for you. Kat

10-09-2007, 06:18 AM	#4 (permalink)
hoping2bmamaKat Guest Location: NY, US Posts: n/a Blog Entries: 37	Hello hopeful, are you okay? Please post when you have a chance!

10-16-2007, 10:21 PM	#6 (permalink)
Hopeful39 Registered User Join Date: Dec 2003 Posts: 57	Thanks for checking in. I have not been on the board since my last post. Whatever was there was G-O-N-E. It was most likely a cyst. I'm thinking of following up with a surgeon to have him review the films. I find out this Friday, if I will start my Lupron. Looking toward an early November transfer.

10-17-2007, 05:11 AM	#7 (permalink)
hoping2bmamaKat Guest Location: NY, US Posts: n/a Blog Entries: 37	That is excellent news! My lump seems to have vanished as well... best of luck to you, Kat

10-23-2007, 05:20 AM	#9 (permalink)
hoping2bmamaKat Guest Location: NY, US Posts: n/a Blog Entries: 37	Hi Nancy! Thanks for the PM! I'm sorry you didn't get a chance to do that cycle on your own -- cycles do take so long to get set up -- but after that mammo scare, I am so glad you are cleared to cycle in November! I hope and pray that your cycle will work for you and you will have the second child you have been longing for! Will your older son be thrilled to have a little sibling? I would have been at his age. I'm also 43, and have been through both IUI and IVF. Finally got off that rollercoaster and this will be my first donor cycle. I'm so grateful that my cousin has offered to help. I didn't grow up knowing her, and until now I had no idea what a loving, caring, giving soul she is! Thanks so much for sharing the story about your friend whose sister donated for her... My cousin is the same age as the sister, so you have given me more hope! I am on BCPs now, and my cousin will probably start stimming in about 3 weeks. We hope to have a transfer around Thanksgiving. Will you join us on the November donor cycle thread? http://www3.fertilethoughts.com/foru...78#post5154578 Best, Kat