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Yes, 50/50, it was devastating. We really had our heart set on the first donor at the time. However, like you said, it was better we found out beforehand than afterwards!
We paid $3,500 for donor testing alone, the donor contracts, donor health insurance, donor attorney, donor agency fee, hotel, airfare, daily stipend and what have you. Less than 2 weeks before she was to start stims, we received word that the donor was a carrier for Tay-Sachs disease. That would mean that if my DH were a carrier, the baby would definitely have the degenerative disease. They wanted to test DH, but we did not even want a 50% possibility that the child would be a carrier and we refused the donor. If my DH were not a carrier, the child would have a 50% chance of being a carrier. The donor agency indicated that many clinics do not test for Tay-Sachs Disease. I know that my previous RE didn't. I was browsing through the donor agency web site and note that her photograph is still on the web site and she recently donated and is selected again for another cycle in May. I guess either the donor agency either are not disclosing to the recipients about the donor, or that the recipient's are ok with the fact that she is a carrier for the disease if that fact was disclosed.
I am glad my Clinic was vigilent in all their testing. It has given me a lot of piece of mind.
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Age 49/DH 45 - Married 24 yrs.
K 02/19/00  (Clomid/C-Section) High Risk
12 IUIs/inject.; 6 IVFs; 1 FET; 1 M/C Twins  
M 11/10/05  (C-Section) High Risk
"Live a good life; and in the end, it's not the years in a life that count...it's the life in your years!" Abraham Lincoln
"Man is not free unless government is limited." Ronald Reagan
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