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About LinkBacksThanks for hanging in here with me. Yesterday DS was invited to a birthday/pool party for one of his bestest friends. We got there and he just sat in the chair next to me, didn't want to swim, wasn't angy-just seemed sad and said he wanted to just go home and play with his Leggos. I had his dad bring his Leggos to the pool and he just worked with them the whole 2+hours. He was also very quiet the day before-said he felt fine. This is NOT normal behavior for an 8 year old boy!
Needless to say I reduced his meds today from 30mg to 20mg.
Calling the doctor later.
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06-01-2009, 09:43 AM #1
CathyRegistered Userhas no status.
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Thanks everyone
Mommy and Warrior Goddess
figuring out what to do-one step at a time, moment by moment, one day at a time and praying to My Father in heaven for healing.
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06-01-2009, 12:32 PM #2
momlaRegistered User Over 5,000 Postnow has a status.
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Momla Mommy to
(10), 
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Baby Girl due April 27th!!
"Shoot for the moon. Even if you miss it you will land among the stars." ~Les Brown
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06-02-2009, 01:13 PM #3
BC-MAVBoard Coordinator for Surrogacy BB Over 5,000 Posthas Queen status
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(((HUGS))) Hang in there while they get the meds and dosage right.
MAV Mom to
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(4/99) (4/05)
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06-03-2009, 08:22 AM #4
CathyRegistered Userhas no status.
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He is definitely much more himself on the lower dose. I don't want a quiet kid. That is NOT who my baby is! he's got imagination, spunk, energy, determination and drive. he's the life of the party-not sitting on the sidelines!
Mommy and Warrior Goddess
figuring out what to do-one step at a time, moment by moment, one day at a time and praying to My Father in heaven for healing.
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06-03-2009, 08:26 AM #5
PhudRegistered User Over 5,000 Postis super busy!
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Really excellent to hear!
Originally Posted by Cathy
I hope there is more smooth sailing from now on.
I don't need you to remind me of my age. I have a bladder to do that for me. ~Stephen Fry
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06-03-2009, 10:31 AM #6
Sooo glad to hear this!! It is so hard to see them not themselves BUT needing the medicine too. I am glad you found a great balance! You are a wonderful mommy
Brandy (37)
Frankie (13) McKenna (10)
Tuberous Sclerosis.....With a cure, our story ends!!!!!!
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06-09-2009, 09:27 PM #7
JoanneNYRegistered User Over 5,000 PostLong time FTer
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So glad that things are improving and the med dosage is getting close to what will work best.
Joanne
Dylan ~ 9 years old and his ^i^ twin
^i^ 3/03
"All great ideas were crazy before they were brilliant."
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