Taxal Chemo

[SHANNONK]

I got my first taxal treatment wednsdsay. I have been in extreme pain ever since. Severe pain in all my bones from head to toe. Huge charlie horses. Hubby has to massage me for several hrs everyday. I take 2 percocet at a time. I havent slept in 2 days. I have a beautiful cute Chihuahua puppy named OLE' hes wonderful. He has a respiratory infection. Hubby has been taking care of him. OLE' sleeps in the crate next to John so he can get up and care for him. I get in so much pain I can barely walk or move. I have to call the dr this am. I dont know what to do. My quality of life sucks right now. I tired and frustrated and cant wait for this nightmare to be over. I am sorry for b-ing again. The dr's are keeping a xtra close watch of me since i get serious infections with chemo. I believe i have a uti and double ear infection now. I hope the dr will see me today and do more lab work. My labs have be extremely low. They took me out of work for the next 4 months. I have been working between fulltime and parttime since i was diagnosed. They wanted me out of work from the beginning but I insisting on working. I work in a medical mental health facility. I really miss the patients adn coworkers. Im not used to being not busy. although I guess I am busy now fighting this breast cancer. Im doing volunteer work for my church out of my house. Organizing and filing paperwork and music. I need to get my taxes done, shopping and get both dogs to the vet again. im just overwhelmed and frustrated. I so need a vacation but the dr's say I cant go anywhere. They are afraid i will get sick etc. anyway i will stop venting and complaining. HUGS thanks for letting me vent god bless.

[Cheri]

Shannon......call your oncologist and insist on stronger pain meds. I did. I had to....the pain was severe for me too. Please call...it really stinks to be in so much pain. Your doctor just doesn't want you to go anywhere because your resistance is low and you are very subseptible to catching germs right now. Please be careful.

Many hugs to you. Chemo sucks, it really does. I feel it's the worst part of cancer. Now go call and get some good meds!!

[SHANNONK]

thanks Cheri. I did put a call into the dr waiting to hear back. Thanks again. I dont knwo whats stronger than percocet perhaps fentyl patch. I dunno. HUGS talk to u sooon.

[Cheri]

Mine gave me Oxycodone..... very strong. Made me haul my butt up to the doctors to get the script. They couldn't even call it in because its so strong. But...a friend drove me and it was worth it. Glad you called!

I remember, I would get up, take 2 steps and then pain would hit my knees so bad that I'd have to grab onto something. And my head.....oh I wanted nothing more than to be pain free again.

[shawny]

Oh Shannon - How I remember the pain! I hope you a have a stronger prescription by now and are feeling some relief. To me the pain felt like someone was hammering nails into my bones. I'm so sorry you're hurting so much. I know it's easier said than done, but try to forget about the taxes, the shopping and the dogs. Can someone do these things for you? In the big picture these things aren't as important as you trying to relax and staying as comfortable as you can. Hang in there. You will get through this.

[SHANNONK]

thanks shawny. the dr is going to give me stronger pain meds and some steroids. I go and pick them up today. I finally feel asleep yesterday at 5pm and slept till about 9 am today. So thats good. Now the diarhea and ears started in. I will get lab work tomorrow and see the nurses tomorrow so thats good. HUGS thanks again for all your support hugs.

[shawny]

Shannon - thinking of you this morning - how are you feeling?

[SaraBB]

Shannon, your post brought tears to my eyes. A few years ago I could have written your post. The pain is awful, get better pain medicine.

My biggest lesson in going through chemo was to let go of many of my "I gotta get all this done" syndrome. It was very hard for me but I had to finally let others help me. It broke my heart to watch others tuck my three babies in at night or have them drop them off at school. I also hated not being at work. What I did was I worked on the days I felt good and other days I had friends come over and chat. I hated being alone, I have always worked and needed the social time. By the way I also work in a mental health office.

I found that people wanted to help me but did not know how. When I asked can anyone help me with laundry, picking up the kids, bath them or just come sit with me, I had a slew of help. People want to help, just give them a job. Remember at work it is Ok to deligate, its also OK to deligate at home.

I know that in the middle of chemo, I felt horrible, but it did pass. I really thought that I would never feel good again. Today I feel as great as before cancer, my body did heal.

Keep coming here and venting, we are here to offer you love and support!

[SHANNONK]

Well i just woke up its now 1230pm. The phone rang. A phonecall I could barely understand. The call consisted of did your hubby finally get a drivers license yet. Just cause he has fas doesnt mean he cant drive blah blah blah. I wasnt very coherent. She didnt even ask how r u etc. I felt like i was being scolded. Well. I got a few things done in the kitchen. Folded some laundry and put a few things away. I had taken alot of pain meds and lorazapam to sleep and I finally swent to bed. I woke up to my female adult dog throwing up in the middle of the night. I just cleaned out my cedar closet fullied a garbage bag of junk lol. Now I need to find a way to reorganize and hang tons of pocket books and scraves and tons of hats. That will be for another day. well i babbled enough hugs kisses thanks for the support HUGS.

[onniebay]

I remember that pain too. I hope you are feeling better soon.