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DawnL

More testing? Enough already!!

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by , 06-03-2009 at 10:57 PM (455 Views)
Jeran's big IEP meeting was last Friday. Everyone was nice, but it went about as well as I expecting. The school district doesn't recognize Sensory Processing Disorder, so no assistance for that will be given.

They let me talk for the first few minutes, and then chimed in. Mostly they just kept saying that they needed to do more testing. They didn't accept the OT evaluation from the hospital OT, and need to test Jeran themselves. They never asked me for a list of what accomodations I was seeking for Jeran. Jeran also has many allergies, and this was addressed as well.I honestly think that the allergies was a big reason why this meeting was made such a big deal. If he didn't have those, I doubt they would have been as communicative as they were.

They want to have the school OT evalate him, which is fine. Then they want "that" school psychologist to give the same "behavioral questionaire" that they had me fill out last year. This is the one that they gave me the results saying he's 3 ponits away from ADHD and that I should take him to the pediatrician.

So they want that test again. And THEN they want him evaluated for autism. But Jeran is NOT autistic, and it's making me angry that they are that desperate to get an "approved label" on him, that they will just try to throw the autism label on him.

Now, if he really WERE autistic, of course we would love him exactly the same, and do everything we could to help him work with that. But we KNOW he's not autistic. I have a feeling the school will do everything they can to get that label on him, since it's an "approved" label. That way, they can justify helping him in the classroom.

I don't think it's fair to Jeran to "mis"label him like that! That label would be in his school records forever. Plus, what about kids that really ARE autistic? Would they then be held up to my son as a standard? "THAT kid's autistic, and he doesn't have problems with this. If that autistic kid can, ALL autistic kids can." Is that what will happen? It's totally not fair.

The tests are supposed to be next week. Dh and I were talking. I am ready to just say "forget it". Dh agrees that Jeran will likely just be home with me next year, but he thinks we should go ahead with the testing. He just doesn't want to close any doors. I'm simply afraid that by doing the testing, and being "mis"labeled, that the wrong info will close doors for Jeran.

Does anyone have any experience with this? I'd love some advice.

There are many reasons we worry about Jeran going to Kindergarten in the fall. The biggest is his inabililty to sit still, be quiet, and keep his hands to himself. He really tries, but he just can't do it yet. There are other reasons, though, too. His allergies are another reason. Plus, he will not have a BM until his has some pretty thick, stinky skid marks in his skivvies. And you have to call him on it, when you smell it, too, he won't just get up then and go.

After his preschool experience, I really am not anxious to send him to any school, anywhere.
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  1. sadie's Avatar
    Be very careful. Because autism is a spectrum disorder, it is pretty easy to call just about anyone autistic.... if you look at the list of symptoms, which of us don't have some of them to some degree? I know I haven't met anyone who doesn't. I think you're right to be cautious about having autism put in his chart.

    My son attended preschool services for speech and o/t. They also batted around autism spectrum and I told them from the get go that it would NEVER be written in his chart. He can be treated by symptoms without it being named, if need be. The speech and o/t agreed (it was the schools half brained psychologist who was so eager to label) btw, only a psychiatrist can DIAGNOSE autism. Don't let anyone else. My son is now 6. I homeschool my 11 year old and always have. I will homeschool him as well. I didn't start with him last year because he needed more time to catch up. I feel completely confident that we did the right thing. What's the hurry? So he can work a year earlier? Better for him to feel more comfortable in his own skin and able to take care of himself. As far as the social reasons to attend school? I don't really buy into it. I always found the image of my 40 year old son unable to sit still or wait his turn to talk in a board room laughable. He'll get it. Our 4, 5, and 6 year olds (esp boys) are just so young. They have their whole lives to work. I looked at it this way... in what ways could I possibly be sorry if I started him at 5 and in what ways could I possibly be sorry if I let him wait till 6.

    Go where your heart and gut tell you to. All you can ever ask of yourself is to make the best decision you can with the info at hand. You are your childs advocate and you will know what is best for him.

    Best of luck! Your son is a lucky boy to have a mom who isn't happy to just sit back and let others decide what is best. As far as I am concerned, that makes him so much better off than most kids.
  2. sadie's Avatar
    ps... they just used developmental delay for my son as a specific diagnosis wasn't required until the age of 7. perhaps you could inquire about that. fwiw, no one who works or sees him now thinks AU. They think sensory integration or perhaps just dyslexia with a touch of fine motor skill issues.
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