Wantsababy2 and anyone regarding bad betas

LisaN · 10-21-2005, 01:47 PM

Wantsababy, you mentioned that you went through a similar beta hell in August. Would you mind sharing with me your situation and your numbers? and how long did it take for you to get af? It really helped me not feel so *flukey* as my nurse called me when you mentioned the same thing happened to you----thank you.

My beta started out at 18, and went to 16, 40, 53, and today is 73. Obviously it's not viable but it's driving me nuts that it isn't going down. I have to go for another beta Monday. My doctor said that they have to wait for higher numbers before they can do an ultrasound----aren't we hoping for lower numbers?

Anything you can add would be appreciated

Thank you,
Lisa

wantsababy2 · 10-21-2005, 02:13 PM

Mine went 37 (14 dpo), 45, 56, 59, 79, then started dropping pretty fast to 76, 9, then finally 0. I think I only did the first 4 every-other-day, then they told me to go every other week until it hit zero.

I m/c 3 weeks after my first beta. I was ecstatic after the first beta, sort of. The nurse told me that my number was too low, but I knew the important thing was for it to double, so I was still happy. After the second beta it all went to hell. 2 weeks and 5 days of waiting to m/c was the absolute worst thing in my life. Then I was told I'd have to sit out the next cycle (which is what I am doing right now - natural cycle) because it might be all screwed up. I'd rather have had a BFN.

You are waiting for the numbers to go down. However, your RE is saying that they can do u/s to rule out ectopic, but only after beta goes over 1000 because anything under 1000 will be too small to see. Hopefully - I know this is an awful thing to say, but - hopefully you don't get there. Ectopics can be very dangerous, as I'm sure you know.

If you do have an ectopic, you should be OK because your low, slow rising betas means its probably not growing and it should dissolve on its own without causing any problems. The danger happens when ectopics grow at regular pace - which means doubling betas - and outgrow their space.

However, if you start to feel ANY kind of pain, call your RE asap.

I'm so sorry you're going through this. Lean on me any time you wish.

Oh, after almost 3 weeks of this, I called my RE's office in absolute despair. He said he would monitor my betas for 1 month and if they kept rising, he would then intervene with either D&C or some shot to help it dissolve faster. (I've seen methotrexate mentioned on these boards, but my RE said something else, I just can't remember what it was). He also said that he was qu

**BC-Maura** · 10-21-2005, 02:17 PM

Hi Lisa: ugh about your beta

. I think your doctor just means if they are still going up, he'd like to get to a point where an u/s will show where the pg is and you need the number to be at certain level before the pg will be visible (I forget what that number is). I hope others with similar experiences chime in. The only time my number kept going up where the pg wasn't viable was when I had my molar (and then the numbers started off pretty normal and then skyrocketed).

Take care and keep in touch+++++++++++
Maura

hmontgomry · 10-21-2005, 05:05 PM

I had a first beta of 11, then 33, then 340, but then 560, 600, 660, then back down to 130's then 9 fairly quickly. It is definetly "hell!" I'm sorry you have to live through it. If they don't start going down after a few more, it could mean ectopic. I don't know why he would need to wait for an u/s. You have to have over 1,000 usually to show anything. They can give you the shot to have it disolve which I would ask for after a few more of not going down. I know a few people on these boards with ectopics and they had major problems when their dr's waited too long. Your numbers are a lot lower than theirs, though so I think they will start going down soon on their own. I'm hoping they do for you!

Heather

wantsababy2 · 10-26-2005, 01:34 PM

Lisa,

How are you doing?

LisaN · 10-26-2005, 01:43 PM

Thanks for asking! I'm doing okay. Unfortunately my beta went up again to 107. I had an u/s yesterday that didn't show anything and I need to have blood work again tomorrow. Hoping and praying my beta goes down because they want to give me methotrexate and it doesn't sound like something I want in my body.

Thanks again for asking

I will update with my beta tomorrow.

Lisa

wantsababy2 · 10-26-2005, 01:53 PM

Oh Lisa, that beta hell sure has you in a grip.

Thankfully, I didn't need the methotrexate, but I was close. RE told me after 1 month of stoopid-looking betas I'd better have it, but I m/c after only 3 weeks of them.

I never looked into methotrexate, I assume you have. I take it you think its horrible stuff? Let's hope it doesn't come to that.

I can't believe I'm saying this to you but-
I hope those betas DROP and FAST!

Take care, and keep us posted.

10-21-2005, 01:47 PM	#1 (permalink)
LisaN 1000-4999 post queen of hearts Join Date: Dec 2002 Location: New England Posts: 2,365	Wantsababy2 and anyone regarding bad betas Wantsababy, you mentioned that you went through a similar beta hell in August. Would you mind sharing with me your situation and your numbers? and how long did it take for you to get af? It really helped me not feel so flukey as my nurse called me when you mentioned the same thing happened to you----thank you. My beta started out at 18, and went to 16, 40, 53, and today is 73. Obviously it's not viable but it's driving me nuts that it isn't going down. I have to go for another beta Monday. My doctor said that they have to wait for higher numbers before they can do an ultrasound----aren't we hoping for lower numbers? Anything you can add would be appreciated Thank you, Lisa Last edited by LisaN; 10-21-2005 at 01:50 PM.

10-21-2005, 02:17 PM	#3 (permalink)
BC-Maura Board Coordinator Join Date: Jan 2002 Posts: 13,270	Hi Lisa: ugh about your beta. I think your doctor just means if they are still going up, he'd like to get to a point where an u/s will show where the pg is and you need the number to be at certain level before the pg will be visible (I forget what that number is). I hope others with similar experiences chime in. The only time my number kept going up where the pg wasn't viable was when I had my molar (and then the numbers started off pretty normal and then skyrocketed). Take care and keep in touch+++++++++++ Maura

10-21-2005, 05:05 PM	#4 (permalink)
hmontgomry Registered User Join Date: Mar 2005 Location: ohio Posts: 1,187	I had a first beta of 11, then 33, then 340, but then 560, 600, 660, then back down to 130's then 9 fairly quickly. It is definetly "hell!" I'm sorry you have to live through it. If they don't start going down after a few more, it could mean ectopic. I don't know why he would need to wait for an u/s. You have to have over 1,000 usually to show anything. They can give you the shot to have it disolve which I would ask for after a few more of not going down. I know a few people on these boards with ectopics and they had major problems when their dr's waited too long. Your numbers are a lot lower than theirs, though so I think they will start going down soon on their own. I'm hoping they do for you! Heather __________________ Me (30) Dh (46) Jimmy 6 3 IUI's BFN 4th IUI BFP M/C 7 weeks 1st IUI w/ inj BFN 2nd IUI w/ Follistim BFP! Twins! Boy/Girl! born 12/12/2006 Heather

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10-21-2005, 02:13 PM	#2 (permalink)
wantsababy2 1000-4999 post queen of hearts Join Date: Aug 2005 Location: Canada Posts: 2,933	Mine went 37 (14 dpo), 45, 56, 59, 79, then started dropping pretty fast to 76, 9, then finally 0. I think I only did the first 4 every-other-day, then they told me to go every other week until it hit zero. I m/c 3 weeks after my first beta. I was ecstatic after the first beta, sort of. The nurse told me that my number was too low, but I knew the important thing was for it to double, so I was still happy. After the second beta it all went to hell. 2 weeks and 5 days of waiting to m/c was the absolute worst thing in my life. Then I was told I'd have to sit out the next cycle (which is what I am doing right now - natural cycle) because it might be all screwed up. I'd rather have had a BFN. You are waiting for the numbers to go down. However, your RE is saying that they can do u/s to rule out ectopic, but only after beta goes over 1000 because anything under 1000 will be too small to see. Hopefully - I know this is an awful thing to say, but - hopefully you don't get there. Ectopics can be very dangerous, as I'm sure you know. If you do have an ectopic, you should be OK because your low, slow rising betas means its probably not growing and it should dissolve on its own without causing any problems. The danger happens when ectopics grow at regular pace - which means doubling betas - and outgrow their space. However, if you start to feel ANY kind of pain, call your RE asap. I'm so sorry you're going through this. Lean on me any time you wish. Oh, after almost 3 weeks of this, I called my RE's office in absolute despair. He said he would monitor my betas for 1 month and if they kept rising, he would then intervene with either D&C or some shot to help it dissolve faster. (I've seen methotrexate mentioned on these boards, but my RE said something else, I just can't remember what it was). He also said that he was qu

10-26-2005, 01:34 PM	#5 (permalink)
wantsababy2 1000-4999 post queen of hearts Join Date: Aug 2005 Location: Canada Posts: 2,933	Lisa, How are you doing?

10-26-2005, 01:43 PM	#6 (permalink)
LisaN 1000-4999 post queen of hearts Join Date: Dec 2002 Location: New England Posts: 2,365	Thanks for asking! I'm doing okay. Unfortunately my beta went up again to 107. I had an u/s yesterday that didn't show anything and I need to have blood work again tomorrow. Hoping and praying my beta goes down because they want to give me methotrexate and it doesn't sound like something I want in my body. Thanks again for asking I will update with my beta tomorrow. Lisa

10-26-2005, 01:53 PM	#7 (permalink)
wantsababy2 1000-4999 post queen of hearts Join Date: Aug 2005 Location: Canada Posts: 2,933	Oh Lisa, that beta hell sure has you in a grip. Thankfully, I didn't need the methotrexate, but I was close. RE told me after 1 month of stoopid-looking betas I'd better have it, but I m/c after only 3 weeks of them. I never looked into methotrexate, I assume you have. I take it you think its horrible stuff? Let's hope it doesn't come to that. I can't believe I'm saying this to you but- I hope those betas DROP and FAST! Take care, and keep us posted.